作者
Keri Brenner, Joseph A Greer, Vicki Jackson, Elyse Park, Emily Wright, Juliet Jacobsen, Carlisle Topping, Annemarie Jagielo, Madeleine Elyze, Isabella Sereno, Jennifer S Temel, Areej El-Jawahri
发表日期
2022/3/1
期刊
Journal of Palliative Medicine
卷号
25
期号
3
页码范围
445-454
出版商
Mary Ann Liebert, Inc., publishers
简介
Background: No reliable instruments exist to measure prognostic awareness and its psychological and behavioral impacts for patients with advanced cancer.
Methods: We developed the Prognostic Awareness Impact Scale (PAIS) using a qualitative approach. During phase 1, we convened a working group with a transdisciplinary team of clinicians from oncology (n = 2), psychology (n = 2), psychiatry (n = 1), palliative care (n = 3), and survey development (n = 1) to identify key domains of PAIS. Using a consensus-driven process, the team generated an item bank for each domain. During phase 2, we conducted cognitive interviews with 39 patients with advanced cancer to assess the understandability of the PAIS.
Results: The working group developed a conceptual framework for PAIS, identifying three domains: (1) cognitive understanding of prognosis (capacity to understand intellectually one's prognosis …
学术搜索中的文章
K Brenner, JA Greer, V Jackson, E Park, E Wright… - Journal of Palliative Medicine, 2022