作者
Mark Jayes, Liz Moulam, Stuart Meredith, Helen Whittle, Yvonne Lynch, Juliet Goldbart, Simon Judge, Edward Webb, David Meads, Bronwyn Hemsley, Janice Murray
发表日期
2021/6
期刊
Qualitative Health Research
卷号
31
期号
7
页码范围
1260-1274
出版商
Sage Publications
简介
In this study, we aimed to identify processes that enabled the involvement of a person with complex speech and motor disorders and the parent of a young person with these disorders as co-researchers in a U.K. research project. Semi-structured individual and focus group interviews explored participants’ experiences and perceptions of public involvement (PI). Sixteen participants were recruited, with representation from (a) the interdisciplinary project team; (b) academics engaged in discrete project activities; (c) individuals providing organizational and operational project support; and (d) the project’s two advisory groups. Data were analyzed using Framework Analysis. Five themes were generated: (a) the challenge of defining the co-researcher role; (b) power relations in PI; (c) resources used to enable PI; (d) perceived benefits of PI; and (e) facilitators of successful PI. Our findings provide new evidence about how …
引用总数
学术搜索中的文章