作者
Allison Tong, Pamela LopezVargas, Martin Howell, Richard Phoon, David Johnson, Denise Campbell, Rowan G Walker, Jonathan C Craig
发表日期
2012/12
期刊
Health Expectations
卷号
15
期号
4
页码范围
410-423
出版商
Blackwell Publishing Ltd
简介
Background  Consumer involvement in guideline development is advocated, but minimal participation, such as a nominated consumer representative on a guideline working group, can inhibit their decisionmaking power and contribution. Little is known about how to involve consumers more effectively in guideline development.
Objective  To describe a targeted approach for involving consumers actively in guideline development, by focusing on topic and outcome selection, and to discuss the impact on content and structure of the final guideline.
Design  Descriptive study.
Setting and participants  Patients and carers (n = 24) from a tertiary hospital in Sydney attended three structured peerfacilitated workshops to complete groupbased exercises on topic and outcome selection for guidelines for early stage chronic kidney disease. These workshops were run in parallel with the guidelinewriting group. For …
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