作者
Christine Fekete, Marcel WM Post, Jerome Bickenbach, James Middleton, Birgit Prodinger, Melissa Selb, Gerold Stucki
发表日期
2017/2/1
期刊
American Journal of Physical Medicine & Rehabilitation
卷号
96
期号
2
页码范围
S5-S16
出版商
LWW
简介
The International Spinal Cord Injury (InSCI) community survey has been developed to collect internationally comparable data on the lived experience of persons with spinal cord injury (SCI) in all 6 WHO regions. The InSCI survey provides a crucial first step to generate evidence on functioning, health maintenance, and subjective well-being in persons with SCI globally. A major challenge in setting up the InSCI community survey was to develop a data model and questionnaire that comprehensively captures what matters to people and, at the same time, is feasible and parsimonious in terms of participant’s burden. This paper outlines the components of the InSCI data model and presents the question selection to operationalize the data model along the 4 guiding principles of efficiency, feasibility, comparability, and truth and discrimination. The data model consists of 6 components operationalized with 125 questions …
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C Fekete, MWM Post, J Bickenbach, J Middleton… - American journal of physical medicine & rehabilitation, 2017