作者
Lesley Ann Saketkoo, Shikha Mittoo, Dörte Huscher, Dinesh Khanna, Paul F Dellaripa, Oliver Distler, Kevin R Flaherty, Sid Frankel, Chester V Oddis, Christopher P Denton, Aryeh Fischer, Otylia M Kowal-Bielecka, Daphne LeSage, Peter A Merkel, Kristine Phillips, David Pittrow, Jeffrey Swigris, Katerina Antoniou, Robert P Baughman, Flavia V Castelino, Romy B Christmann, Lisa Christopher-Stine, Harold R Collard, Vincent Cottin, Sonye Danoff, Kristin B Highland, Laura Hummers, Ami A Shah, Dong Soon Kim, David A Lynch, Frederick W Miller, Susanna M Proudman, Luca Richeldi, Jay H Ryu, Nora Sandorfi, Catherine Sarver, Athol U Wells, Vibeke Strand, Eric L Matteson, Kevin K Brown, James R Seibold, Rohit Aggarwal, Gillian Ainslie, Firas Alkassab, Yannick Allanore, Paris Descartes, Marina E Anderson, Andrew P Andonopoulos, Danielle Antin-Ozerkis, Ana Arrobas, Dana P Ascherman, Shervin Assassi, Murray Baron, Joan M Bathon, Juergen Behr, Lorenzo Beretta, Clifton O Bingham, Matthew Binnie, Surinder S Birring, Francesco Boin, Tim Bongartz, Arnaud Bourdin, Demosthenes Bouros, Richard Brasington, Paul Bresser, Maya H Buch, P Sherwood Burge, Loreto Carmona, Patricia E Carreira, Carlos RR Carvalho, Luis J Catoggio, Kevin M Chan, Jeffrey Chapman, Soumya Chatterjee, Felix Chua, Lorinda Chung, Matthew Conron, Tamera Corte, Gregory Cosgrove, Ulrich Costabel, Gerard Cox, Bruno Crestani, Leslie J Crofford, Mary E Csuka, Pablo Curbelo, Czirják László, Zoe Daniil, Christine L D'Arsigny, Gerald S Davis, Joao A de Andrade, Paul De Vuyst, Owen J Dempsey, Chris T Derk, Jörg Distler, William G Dixon, Gregory Downey, Mittie K Doyle, Marjolein Drent, Lakshmi Durairaj, Paul Emery, Luis R Espinoza, Dominique Farge, Maryam Fathi, Charlene D Fell, Barri J Fessler, John E Fitzgerald, George A Fox, Ivan Foeldvari, Tracy M Frech, Sara Freitas, Daniel E Furst, Armando Gabrielli, Rosario García-Vicuña, Ognian B Georgiev, Anthony Gerbino, Adrian Gillisen, Dafna D Gladman, Marilyn Glassberg, Bernadette R Gochuico, Athena Gogali, Nicole S Goh, Avram Goldberg, Hilary J Goldberg, Mark F Gourley, Leroy Griffing, Jan C Grutters, Ragnar Gunnarsson, Eric Hachulla, Frances C Hall, Sergio Harari, Ariane L Herrick, Erica L Herzog, Roger Hesselstrand, Nikhil Hirani, Ulla Hodgson, Helen M Hollingsworth, Robert J Homer, Rachel K Hoyles, Vivien M Hsu, Richard B Hubbard, Nicolas Hunzelmann, Maria Eloisa Isasi, Elida Susana Isasi, Jacobsen Soren Sergio A Jimenez, Sindhu R Johnson, Christine H Jones, Bashar Kahaleh, Ronaldo A Kairalla, Meena Kalluri, Sanjay Kalra
发表日期
2013/12/24
期刊
Thorax
页码范围
thoraxjnl-2013-204202
出版商
BMJ Publishing Group Ltd and British Thoracic Society
简介
Rationale
Clinical trial design in interstitial lung diseases (ILDs) has been hampered by lack of consensus on appropriate outcome measures for reliably assessing treatment response. In the setting of connective tissue diseases (CTDs), some measures of ILD disease activity and severity may be confounded by non-pulmonary comorbidities.
Methods
The Connective Tissue Disease associated Interstitial Lung Disease (CTD-ILD) working group of Outcome Measures in Rheumatology—a non-profit international organisation dedicated to consensus methodology in identification of outcome measures—conducted a series of investigations which included a Delphi process including >248 ILD medical experts as well as patient focus groups culminating in a nominal group panel of ILD experts and patients. The goal was to define and develop a consensus on the status of outcome measure candidates for use in …
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