作者
Béatrice Godard, Jörg Schmidtke, Jean-Jacques Cassiman, Ségolene Aymé
发表日期
2003/12
来源
European journal of human genetics
卷号
11
期号
2
页码范围
S88-S122
出版商
Nature Publishing Group
简介
The purpose of this paper is to formulate a professional and scientific view on the social, ethical, and legal issues that impact on data storage and DNA banking practices for biomedical research in Europe. Many aspects have been considered, such as the requirements for data storage and DNA banking in the public and private sectors in Europe and the issues relating to DNA banking, that is to say the consent requirements for the banking and further uses of DNA samples, their control and ownership, and the return of benefit derived from DNA exploitation to the community. The methods comprise primarily the review of the existing professional guidelines, legal frameworks and other documents related to the data storage and DNA banking practices in public and private sectors in Europe. Then, the issues related to DNA banking were examined during an international workshop organized by the European Society of …
引用总数
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