作者
Daniel Sumpton, Ayano Kelly, David J Tunnicliffe, Jonathan C Craig, Geraldine Hassett, Diana Chessman, Allison Tong
发表日期
2020/5
来源
Arthritis care & research
卷号
72
期号
5
页码范围
711-722
简介
Objective
To describe the range and depth of perspectives and experiences of patients with psoriasis and psoriatic arthritis to inform gaps in patient‐centered care.
Methods
We searched MEDLINE, Embase, PsycINFO, and CINAHL to April 2018. Thematic synthesis was used to analyze the findings.
Results
We included 56 studies involving 1,484 adult patients with psoriasis (n = 1,147) and psoriatic arthritis (n = 337). Six themes (and subthemes) were identified: suffering uncontrollable and ongoing upheaval (dictating life choices and course, disrupting family and social roles, limited by debilitating symptoms, unstoppable and far‐reaching fatigue), weighed down by mental load (anxiety provoked by the volatility of symptoms, dreading deterioration, struggling with unrecognized distress, helpless and nihilistic), harboring shame and judgement (marked as unhygienic and contagious, rejected and isolated, hiding …
引用总数
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