作者
Sandra Taylor, Susan Treloar, Kristine Barlow‐Stewart, Mark Stranger, Margaret Otlowski
发表日期
2008/7/1
期刊
Clinical genetics
卷号
74
期号
1
页码范围
20-30
出版商
Blackwell Publishing Ltd
简介
We report first results from the Australian Genetic Discrimination Project of clinical genetics services clients’ perceptions and experiences regarding alleged differential treatment associated with having genetic information. Adults (n = 2667) who had presented from 1998 to 2003 regarding predictive or presymptomatic testing for designated mature‐onset conditions were surveyed; 951/1185 respondents met inclusion criteria for current asymptomatic status. Neurological conditions and familial cancers were primary relevant conditions for 87% of asymptomatic respondents. Specific incidents of alleged negative treatment, reported by 10% (n = 93) of respondents, occurred in life insurance (42%), employment (5%), family (22%), social (11%) and health (20%) domains. Respondents where neuro‐degenerative conditions were relevant were more likely overall to report incidents and significantly more likely to report …
引用总数
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