作者
Samar M Aoun, Paul A Cafarella, Bruce Rumbold, Geoff Thomas, Anne Hogden, Leanne Jiang, Sonia Gregory, David W Kissane
发表日期
2021/1/2
期刊
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
卷号
22
期号
1-2
页码范围
12-22
出版商
Taylor & Francis
简介
Background
Although Motor Neurone Disease (MND) caregivers are most challenged physically and psychologically, there is a paucity of population-based research to investigate the impact of bereavement, unmet needs, range of supports, and their helpfulness as perceived by bereaved MND caregivers. Methods: An anonymous national population-based cross-sectional postal and online survey of bereavement experiences of family caregivers who lost a relative/friend to MND in 2016, 2017, and 2018. Recruitment was through all MND Associations in Australia. Results: 393 valid responses were received (31% response rate). Bereaved caregiver deterioration in physical (31%) and mental health (42%) were common. Approximately 40% did not feel their support needs were met. Perceived insufficiency of support was higher for caregivers at high bereavement risk (63%) and was associated with a significant …
引用总数
20212022202320247554
学术搜索中的文章
SM Aoun, PA Cafarella, B Rumbold, G Thomas… - Amyotrophic Lateral Sclerosis and Frontotemporal …, 2021