作者
Kelly James, Diane Keegan-Wells, Pamela S Hinds, Katherine P Kelly, Dana Bond, Brenda Hall, Rosemary Mahan, Ida M Moore, Lona Roll, Beth Speckhart
发表日期
2002/11
期刊
Journal of Pediatric Oncology Nursing
卷号
19
期号
6
页码范围
218-228
出版商
Sage Publications
简介
Parents are actively involved in the direct care of their ill child receiving cancer treatment by providing and monitoring therapy and by managing symptoms related to the therapy or to the disease itself. Little is known about parents' perception of what helps or hinders them with their caregiving responsibilities or what effect the caregiving role has on the parent. In this descriptive, exploratory study, 151 parents responded to one or more of six open-ended questions that were part of the newly developed instrument, Care of My Child with Cancer. The 1,280 responses were analyzed using a semantic content analysis technique. The most frequently reported effect on parental caregiving involved negative physical and emotional health. One parent responded, "You feel like you lose all control over your life. It's no longer your own." The most desired forms of assistance with the caregiving role were periodic relief from direct …
引用总数
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学术搜索中的文章
K James, D Keegan-Wells, PS Hinds, KP Kelly, D Bond… - Journal of Pediatric Oncology Nursing, 2002