作者
Jeanette Wilburn, Stephen P McKenna, Alice Heaney, Matthew Rouse, Michael Taylor, Alison Culkin, Simon Gabe, Sorrel Burden, Simon Lal
发表日期
2018/6/1
期刊
Clinical Nutrition
卷号
37
期号
3
页码范围
978-983
出版商
Churchill Livingstone
简介
Background & aims
Patients with Type 3 Intestinal Failure (IF) who need Home Parenteral Nutrition (HPN) face several clinical, psychological and social problems.
The study was designed to produce and test the first patient-centric measure for HPN (‘PNIQ: Parenteral Nutrition Impact Questionnaire’). The new measure focused on the extent to which patients were able to fulfil their human needs.
Methods
Questionnaire content was derived from the analysis of transcripts of interviews conducted with UK HPN patients. Cognitive debriefing interviews (CDIs) were performed to ensure patients found the draft scale clear, relevant and accessible. Finally, a test–-retest postal validation survey was conducted to reduce the number of items in the scale and to ensure that; it was unidimensional, reproducible and had construct validity.
Results
The 30 interview transcripts were analysed to identify issues related to a wide range of …
学术搜索中的文章
J Wilburn, SP McKenna, A Heaney, M Rouse, M Taylor… - Clinical Nutrition, 2018