作者
Laura Howells, Kim S Thomas, Alison V Sears, Ibrahim Nasr, Andreas Wollenberg, Marie LA Schuttelaar, Geertruida LE Romeijn, Amy S Paller, Kelly Mueller, Kristina Doytcheva, Yoko Kataoka, Justine Daguze, Sébastien Barbarot, Laura Beate Von Kobyletzki, Linda Beckman, Sonia Ratib, Fiona Cowdell, Miriam Santer, Joanne R Chalmers, long‐term control of eczema working group for the HOME initiative
发表日期
2019/6
期刊
Journal of the European Academy of Dermatology and Venereology
卷号
33
期号
6
页码范围
1124-1132
简介
Background
Atopic eczema (also known as eczema) is a chronic, inflammatory skin condition that often afflicts patients’ health and well‐being. The Harmonising Outcome Measures for Eczema (HOME) initiative recommends that ‘long‐term control of eczema’ is measured in all clinical trials 3 months or longer in duration. However, little has been published on what eczema control means to those living with or treating atopic eczema.
Objectives
To (i) develop understanding of what eczema control means to patients, carers and clinicians and (ii) explore the feasibility and acceptability of different ways of measuring eczema control in the long term.
Methods
Online focus groups explored patients/carers experiences in the UK, the United States, the Netherlands, France, Sweden and Japan, and an international online survey gathered views of clinicians. The framework method was used to analyse the focus groups …
学术搜索中的文章
L Howells, KS Thomas, AV Sears, I Nasr, A Wollenberg… - Journal of the European Academy of Dermatology and …, 2019