作者
Laura K Brunton, Doreen J Bartlett
发表日期
2013/11/1
期刊
Disability and rehabilitation
卷号
35
期号
23
页码范围
1981-1990
出版商
Taylor & Francis
简介
Purpose: The aim of the study was to describe the lived bodily experience of cerebral palsy (CP). Method: This was a descriptive phenomenological inquiry. Ten participants were interviewed about their bodily experiences of living with CP. Interviews were semi-structured around pain and fatigue. Inductive thematic analysis was used to identify themes. Results: The bodily experience of CP centered on issues of fatigue and pain as a feeling of muscle soreness. An overwhelming amount of the discussion on fatigue emphasized the fatigue that occurs with walking and prolonged activity. Self-awareness of the individuals’ own bodies and adapting activity to continue to participate in various aspects of their lives emerged as the most important theme. Some participants used strategies to manage their pain or fatigue; other participants were not yet fully aware of how to recognize signs of fatigue and/or how to adapt their …
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