作者
Sumytra Menon, Marijke C Kars, Chetna Malhotra, Alastair V Campbell, Johannes JM van Delden
发表日期
2018/8/1
期刊
Journal of Pain and Symptom Management
卷号
56
期号
2
页码范围
213-221. e4
出版商
Elsevier
简介
Context
Advance care planning (ACP) has been shown to improve end-of-life care, but it was developed in the U.S., and most research has been conducted in western communities.
Objectives
We aimed to study the attitudes and perceptions of patients with life-limiting illnesses, informal caregivers, doctors, nurses, and medical social workers regarding ACP in a multicultural family centric community.
Methods
We conducted an explorative qualitative study, using focus groups and individual in-depth interviews. We used purposive sampling techniques to recruit 61 adults (15 doctors, 13 nurses, 5 medical social workers, 15 patients, and 13 caregivers) from multiple health care settings across the country.
Results
The participants are genuinely anxious about the implementation of ACP. They had positive and negative expectations of ACP. Many were confused about the legal framework for health care decision-making …
引用总数
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