作者
Sarah Mitchell, Jenna L Spry, Emma Hill, Jane Coad, Jeremy Dale, Adrian Plunkett
发表日期
2019/5/1
期刊
BMJ open
卷号
9
期号
5
页码范围
e028548
出版商
British Medical Journal Publishing Group
简介
Objectives
To provide an in-depth insight into the experience and perceptions of bereaved parents who have experienced end of life care decision-making for children with life-limiting or life-threatening conditions in the paediatric intensive care unit (PICU).
Design
An in-depth qualitative interview study with a sample of parents of children with life-limiting or life-threatening conditions who had died in PICU within the previous 12 months. A thematic analysis was conducted on the interview transcripts.
Setting
A PICU in a large National Health Service (NHS) tertiary children’s hospital in the West Midlands, UK.
Participants
17 parents of 11 children who had died in the PICU.
Results
Five interconnected themes were identified related to end of life care decision-making:(1) parents have significant knowledge and experiences that influence the decision-making process.(2) Trusted relationships with healthcare professionals …
学术搜索中的文章
S Mitchell, JL Spry, E Hill, J Coad, J Dale, A Plunkett - BMJ open, 2019