作者
Francesco Zulian, Roberta Culpo, Francesca Sperotto, Jordi Anton, Tadej Avcin, Eileen M Baildam, Christina Boros, Jeffrey Chaitow, Tamàs Constantin, Ozgur Kasapcopur, Sheila Knupp Feitosa de Oliveira, Clarissa A Pilkington, Ricardo Russo, Natasa Toplak, Annet Van Royen, Claudia Saad Magalhães, Sebastiaan J Vastert, Nico M Wulffraat, Ivan Foeldvari
发表日期
2019/8/1
期刊
Annals of the rheumatic diseases
卷号
78
期号
8
页码范围
1019-1024
出版商
BMJ Publishing Group Ltd
简介
In 2012, a European initiative called Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) was launched to optimise and disseminate diagnostic and management regimens in Europe for children and young adults with rheumatic diseases. Juvenile localised scleroderma (JLS) is a rare disease within the group of paediatric rheumatic diseases (PRD) and can lead to significant morbidity. Evidence-based guidelines are sparse and management is mostly based on physicians’ experience. This study aims to provide recommendations for assessment and treatment of JLS. Recommendations were developed by an evidence-informed consensus process using the European League Against Rheumatism standard operating procedures. A committee was formed, mainly from Europe, and consisted of 15 experienced paediatric rheumatologists and two young fellows. Recommendations derived …
学术搜索中的文章
F Zulian, R Culpo, F Sperotto, J Anton, T Avcin… - Annals of the rheumatic diseases, 2019