作者
Allison F Vitonis, Katy Vincent, Nilufer Rahmioglu, Amelie Fassbender, Germaine M Buck Louis, Lone Hummelshoj, Linda C Giudice, Pamela Stratton, G David Adamson, Christian M Becker, Krina T Zondervan, Stacey A Missmer, GD Adamson, C Allaire, R Anchan, CM Becker, MA Bedaiwy, GM Buck Louis, C Calhaz-Jorge, K Chwalisz, TM D'Hooghe, A Fassbender, T Faustmann, AT Fazleabas, I Flores, A Forman, I Fraser, LC Giudice, M Gotte, P Gregersen, S-W Guo, T Harada, D Hartwell, AW Horne, ML Hull, L Hummelshoj, MG Ibrahim, L Kiesel, MR Laufer, K Machens, S Mechsner, SA Missmer, GW Montgomery, A Nap, Mette Nyegaard, KG Osteen, CA Petta, N Rahmioglu, SP Renner, J Riedlinger, S Roehrich, PA Rogers, L Rombauts, A Salumets, E Saridogan, T Seckin, P Stratton, KL Sharpe-Timms, S Tworoger, P Vigano, K Vincent, AF Vitonis, U-H Wienhues-Thelen, PP Yeung Jr, P Yong, KT Zondervan
发表日期
2014/11/1
来源
Fertility and sterility
卷号
102
期号
5
页码范围
1223-1232
出版商
Elsevier
简介
Objective
To harmonize the collection of nonsurgical clinical and epidemiologic data relevant to endometriosis research, allowing large-scale collaboration.
Design
An international collaboration involving 34 clinical/academic centers and three industry collaborators from 16 countries on five continents.
Setting
In 2013, two workshops followed by global consultation, bringing together 54 leaders in endometriosis research.
Patients
None.
Intervention(s)
Development of a self-administered endometriosis patient questionnaire (EPQ), based on [1] systematic comparison of questionnaires from eight centers that collect data from endometriosis cases (and controls/comparison women) on a medium to large scale (publication on >100 cases); [2] literature evidence; and [3] several global consultation rounds.
Main Outcome Measure(s)
Standard recommended and minimum required questionnaires to capture detailed clinical and …
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