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The aim of this study was to describe the psychological experiences of children and young people with long term physical conditions, their families and clinicians and to explore if these may be improved using eHealth interventions, including online information, support and e‐therapy.

Totally 11 children (7–12 years), 11 young people (13–18 years), 7 parents, 11 paediatricians and 10 general practitioners participated in a series of seven semi‐structured digitally recorded focus groups. A general inductive approach was used to analyse interview data.

Feedback consisted of five main themes: (i) the experience of long‐term physical conditions as an anxiety‐provoking journey, (ii) limited access to information and eHealth‐related interventions to support this journey, (iii) desires for interventions that assist with multiple aspects of the illness experience, (iv) diversity of preferences regarding the …