作者
Shannon L Murphy, John D Mahan, Jonathan P Troost, Tarak Srivastava, Amy J Kogon, Yi Cai, T Keefe Davis, Hilda Fernandez, Alessia Fornoni, Rasheed A Gbadegesin, Emily Herreshoff, Pietro A Canetta, Patrick H Nachman, Bryce B Reeve, David T Selewski, Christine B Sethna, Chia-shi Wang, Sharon M Bartosh, Debbie S Gipson, Katherine R Tuttle, Ali Gharavi, Wooin Ahn, Gerald B Appel, Rupali S Avasare, Revekka Babayev, Ibrahim Batal, Andrew S Bomback, Eric Brown, Eric S Campenot, Pietro Canetta, Brenda Chan, Vivette D D’Agati, Bartosz Foroncewicz, Gian Marco Ghiggeri, William H Hines, Namrata G Jain, Krzysztof Kiryluk, Fangming Lin, Francesca Lugani, Maddalena Marasa, Glen Markowitz, Sumit Mohan, Krzysztof Mucha, Thomas L Nickolas, Jai Radhakrishnan, Maya K Rao, Renu Regunathan-Shenk, Simone Sanna-Cherchi, Dominick Santoriello, Michael B Stokes, Natalie Yu, Anthony M Valeri, Ronald Zviti, Larry A Greenbaum, William E Smoyer, Amira Al-Uzri, Isa Ashoor, Diego Aviles, Rossana Baracco, John Barcia, Sharon Bartosh, Craig Belsha, Michael C Braun, Aftab Chishti, Donna Claes, Carl Cramer, Keefe Davis, Elif Erkan, Daniel Feig, Michael Freundlich, Melisha Hanna, Guillermo Hidalgo, Amrish Jain, Myda Khalid, Mahmoud Kallash, Jerome C Lane, John Mahan, Nisha Mathews, Carla Nester, Cynthia Pan, Hiren Patel, Adelaide Revell, Rajasree Sreedharan, Julia Steinke, Scott E Wenderfer, Craig S Wong, Ronald Falk, William Cook, Vimal Derebail, Agnes Fogo, Adil Gasim, Todd Gehr, Raymond Harris, Jason Kidd, Louis-Philippe Laurin, Will Pendergraft, Vincent Pichette, Thomas Brian Powell, Matthew B Renfrow, Virginie Royal, Lawrence B Holzman, Sharon Adler, Charles Alpers, Raed Bou Matar, Elizabeth Brown, Michael Choi, Katherine M Dell, Ram Dukkipati, Fernando C Fervenza, Crystal Gadegbeku, Patrick Gipson, Leah Hasely, Sangeeta Hingorani, Michelle A Hladunewich, Jonathan Hogan, J Ashley Jefferson, Kenar Jhaveri, Duncan B Johnstone, Frederick Kaskel, Amy Kogan, Jeffrey Kopp, Kevin V Lemley, Laura Malaga-Dieguez, Kevin Meyers, Alicia Neu, Michelle Marie O'Shaughnessy, John F O’Toole, Rulan Parekh, Heather Reich, Kimberly Reidy, Helbert Rondon, Kamalanathan K Sambandam, John R Sedor, Jeffrey Schelling, John C Sperati, Agnes Swiatecka-Urban, Howard Trachtman, Joseph Weisstuch, Olga Zhdanova, Brenda Gillespie, Matthias Kretzler, Bruce M Robinson, Laura Mariani, Matthew Wladkowski, Lisa M Guay-Woodford
发表日期
2020/10/1
期刊
Kidney international reports
卷号
5
期号
10
页码范围
1679-1689
出版商
Elsevier
简介
Introduction
Prior cross-sectional studies suggest that health-related quality of life (HRQOL) worsens with more severe glomerular disease. This longitudinal analysis was conducted to assess changes in HRQOL with changing disease status.
Methods
Cure Glomerulonephropathy (CureGN) is a cohort of patients with minimal change disease, focal segmental glomerulosclerosis, membranous nephropathy, IgA vasculitis, or IgA nephropathy. HRQOL was assessed at enrollment and follow-up visits 1 to 3 times annually for up to 5 years with the Patient-Reported Outcomes Measurement Information System (PROMIS). Global health, anxiety, and fatigue domains were measured in all; mobility was measured in children; and sleep-related impairment was measured in adults. Linear mixed effects models were used to evaluate HRQOL responsiveness to changes in disease status.
Results
A total of 469 children and 1146 …
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SL Murphy, JD Mahan, JP Troost, T Srivastava… - Kidney international reports, 2020