作者
Daniel Hsiang-Te Tsai, J Simon Bell, Shahab Abtahi, Brenda N Baak, Marloes T Bazelier, Ruth Brauer, Adrienne YL Chan, Esther W Chan, Haoqian Chen, Celine SL Chui, Sharon Cook, Stephen Crystal, Poonam Gandhi, Sirpa Hartikainen, Frederick K Ho, Shao-Ti Hsu, Jenni Ilomäki, Ju Hwan Kim, Olaf H Klungel, Marjaana Koponen, Wallis CY Lau, Kui Kai Lau, Terry YS Lum, Hao Luo, Kenneth KC Man, Jill P Pell, Soko Setoguchi, Shih-Chieh Shao, Chin-Yao Shen, Ju-Young Shin, Patrick C Souverein, Anna-Maija Tolppanen, Li Wei, Ian CK Wong, Edward Chia-Cheng Lai
发表日期
2023/12/31
期刊
Clinical epidemiology
页码范围
1241-1252
出版商
Taylor & Francis
简介
Purpose
To describe and categorize detailed components of databases in the Neurological and Mental Health Global Epidemiology Network (NeuroGEN).
Methods
An online 132-item questionnaire was sent to key researchers and data custodians of NeuroGEN in North America, Europe, Asia and Oceania. From the responses, we assessed data characteristics including population coverage, data follow-up, clinical information, validity of diagnoses, medication use and data latency. We also evaluated the possibility of conversion into a common data model (CDM) to implement a federated network approach. Moreover, we used radar charts to visualize the data capacity assessments, based on different perspectives.
Results
The results indicated that the 15 databases covered approximately 320 million individuals, included in 7 nationwide claims databases from Australia, Finland, South Korea, Taiwan and the US, 6 …
学术搜索中的文章
DHT Tsai, JS Bell, S Abtahi, BN Baak, MT Bazelier… - Clinical epidemiology, 2023