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Cystic fibrosis (CF) require parents to make significant lifestyle changes to accommodate their children's treatments. We examined the impact of CF‐related caregiving on parents' occupational adjustment and labor supply in terms of organizational changes, presenteeism, and absenteeism.

Nineteen Italian CF referral centers joined the LINFA group. We enrolled 168 adolescents with the disease and their parents (n = 225) in a cross‐sectional survey research. Patients and their parents answered a self‐administered questionnaire (child: SF‐12, satisfaction with life, MRC Dyspnea scale; parent: caregiver burden scale, short depression–happiness scale, self‐rated health, socio‐demographic factors). A pediatrician recorded clinical information (pulmonary exacerbations, CF‐related complications, treatment, BMI percentile, Fev₁%).

Patients mean age was 16 ± 2.6 and mean BMI …