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Background: Down syndrome is the commonest cause of intellectual impairment but many of the parents and caretakers are not fully aware of the strengths and challenges involved in bringing up a child with this condition. Misconceptions about their ability to live in an inclusive society is very high and hence this study was conducted to have an insight about their knowledge attitude and beliefs. Aim: To study the personal and social impact in the families of persons with Down syndrome.

Method: A questionnaire with 28 questions was given to parents/caretakers who attended a meeting for parents of persons with Down syndrome and their reponses were analyzed.

Results: The group had a fairly good knowledge of the condition when compared to others as seen from some similar studies. But late counseling and lack of awareness of the various therapies resulted in delayed start of early interventional programmes …