作者
Silke Apers, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Eva Mattsson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Anitra W Romfh, Kamila White, Edward Callus, Shelby Kutty, Steffen Fieuws, Philip Moons, APPROACH-IS consortium and ISACHD
发表日期
2016/5/17
期刊
Journal of the American College of Cardiology
卷号
67
期号
19
页码范围
2237-2245
出版商
American College of Cardiology Foundation
简介
Background
Measuring quality of life (QOL) is fundamental to understanding the impact of disease and treatment on patients’ lives.
Objectives
This study aimed to explore QOL in an international sample of adults with congenital heart disease (CHD), the association between patient characteristics and QOL, and international variation in QOL and its relationship to country-specific characteristics.
Methods
We enrolled 4,028 adults with CHD from 15 countries. QOL was assessed using a linear analog scale (LAS) (0 to 100) and the Satisfaction with Life Scale (SWLS) (5 to 35). Patient characteristics included sex, age, marital status, educational level, employment status, CHD complexity, and patient-reported New York Heart Association (NYHA) functional class. Country-specific characteristics included general happiness and 6 cultural dimensions. Linear mixed models were applied.
Results
Median QOL was 80 on the LAS …
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