作者
Vicki S Freimuth, Sandra Crouse Quinn, Stephen B Thomas, Galen Cole, Eric Zook, Ted Duncan
发表日期
2001/3/1
来源
Social science & medicine
卷号
52
期号
5
页码范围
797-808
出版商
Pergamon
简介
The participation of African Americans in clinical and public health research is essential. However, for a multitude of reasons, participation is low in many research studies. This article reviews the literature that substantiates barriers to participation and the legacy of past abuses of human subjects through research. The article then reports the results of seven focus groups with 60 African Americans in Los Angeles, Chicago, Washington, DC, and Atlanta during the winter of 1997. In order to improve recruitment and retention in research, the focus group study examined knowledge of and attitudes toward medical research, knowledge of the Tuskegee Syphilis Study, and reactions to the Home Box Office production, Miss Evers’ Boys, a fictionalized version of the Tuskegee Study, that premiered in February, 1997. The study found that accurate knowledge about research was limited; lack of understanding and trust of …
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