作者
Jennifer L Alabran, Jody E Hooper, Melissa Hill, Sandra E Smith, Kimberlee K Spady, Lara E Davis, Lauren S Peterson, Suman Malempati, Christopher W Ryan, Rae Acosta, Sheri L Spunt, Charles Keller
发表日期
2013/2
期刊
Pediatric blood & cancer
卷号
60
期号
2
页码范围
204-209
出版商
Wiley Subscription Services, Inc., A Wiley Company
简介
Background
More than 13,000 children annually in the United States and Canada under the age of 20 will be diagnosed with cancer at a mortality approaching 20% 1,2. Tumor samples obtained by autopsy provide an innovative way to study tumor progression, potentially aiding in the discovery of new treatments and increased survival rates. The purpose of this study was to identify barriers to autopsies and develop guidelines for requesting autopsies for research purposes.
Procedure
Families of children treated for childhood cancer were referred by patient advocacy groups and surveyed about attitudes and experiences with research autopsies. From 60 interviews, barriers to autopsy and tumor banking were identified. An additional 14 interviews were conducted with medical and scientific experts.
Results
Ninety‐three percent of parents of deceased children did or would have consented to a research autopsy …
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JL Alabran, JE Hooper, M Hill, SE Smith, KK Spady… - Pediatric blood & cancer, 2013