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To explore experiences and the significance of relationships and dynamics among family members living with a child with severe kidney disease.

Chronic kidney disease (CKD) in children is often incurable, leading to irreversible kidney damage. End‐stage kidney failure in a child impacts daily life and routines, requiring significant social adaptation for all family members. However, little is known about how individual family members experience relationships, interactions and dynamics within the family.

A qualitative exploratory study taking a phenomenological–hermeneutic approach.

Data were collected through semi‐structured individual interviews with seven fathers, seven mothers, five children with end‐stage kidney disease and five siblings. The data were analysed using Ricoeur's theory of narrative and interpretation, on three levels: naïve reading; structural …