作者
Bryce B Reeve, Kathleen W Wyrwich, Albert W Wu, Galina Velikova, Caroline B Terwee, Claire F Snyder, Carolyn Schwartz, Dennis A Revicki, Carol M Moinpour, Lori D McLeod, Jessica C Lyons, William R Lenderking, Pamela S Hinds, Ron D Hays, Joanne Greenhalgh, Richard Gershon, David Feeny, Peter M Fayers, David Cella, Michael Brundage, Sara Ahmed, Neil K Aaronson, Zeeshan Butt
发表日期
2013/10
来源
Quality of Life Research
卷号
22
页码范围
1889-1905
出版商
Springer Netherlands
简介
Purpose
An essential aspect of patient-centered outcomes research (PCOR) and comparative effectiveness research (CER) is the integration of patient perspectives and experiences with clinical data to evaluate interventions. Thus, PCOR and CER require capturing patient-reported outcome (PRO) data appropriately to inform research, healthcare delivery, and policy. This initiative’s goal was to identify minimum standards for the design and selection of a PRO measure for use in PCOR and CER.
Methods
We performed a literature review to find existing guidelines for the selection of PRO measures. We also conducted an online survey of the International Society for Quality of Life Research (ISOQOL) membership to solicit input on PRO standards. A standard was designated as “recommended” when >50 % respondents endorsed it as “required as a …
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BB Reeve, KW Wyrwich, AW Wu, G Velikova… - Quality of Life Research, 2013