作者
Marta Bassi, Monica Falautano, Sabina Cilia, Benedetta Goretti, Monica Grobberio, Marianna Pattini, Erika Pietrolongo, Rosa Gemma Viterbo, Maria Pia Amato, Miriam Benin, Alessandra Lugaresi, Vittorio Martinelli, Enrico Montanari, Francesco Patti, Maria Trojano, Antonella Delle Fave
发表日期
2014/2/15
期刊
Journal of the Neurological Sciences
卷号
337
期号
1-2
页码范围
67-73
出版商
Elsevier
简介
Background
Studies on emotional distress and health-related quality of life (HRQOL) broadened the traditional bio-medical focus in MS research, but little attention was paid to general well-being indicators.
Objective
To investigate for the first time both ill-being and well-being dimensions in persons with MS (PwMSs), caregivers and health professionals, in relation to both health and life in general.
Methods
A multi-center study assessed participants' depression (Beck Depression Inventory-II), HRQOL (Short Form-36), psychological well-being (Psychological Well-Being Scales), optimal experience (Flow Questionnaire), life satisfaction (Satisfaction with Life Scale), hedonic balance (Positive Affect and Negative Affect Schedule). Demographic and clinical information was also gathered.
Results
Overall, 71 PwMSs, 71 caregivers and 26 professionals were enrolled (N = 168). Compared to healthy populations, PwMSs …
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