标题/作者	年份
‘Every time I see him he’s the worst he’s ever been and the best he’ll ever be’: grief and sadness in children and young people who have a parent with dementia P Sikes, M Hall Mortality 22 (4), 324-338	2017
The impact of parental young onset dementia on children and young people's educational careers P Sikes, M Hall British Educational Research Journal 44 (4), 593-607	2018
“It would be easier if she’d died”: Young people with parents with dementia articulating inadmissible stories M Hall, P Sikes Qualitative Health Research 27 (8), 1203-1214	2017
Beyond crisis: Enacted sense-making among ethnic minority carers of people with dementia in Australia B Brijnath, AS Gilbert, M Kent, K Ellis, C Browning, D Goeman, J Adams, ... Dementia 20 (6), 1910-1924	2021
‘It’s just limboland’: Parental dementia and young people’s life courses M Hall, P Sikes The Sociological Review 68 (1), 242-259	2020
Too close for comfort?: ethical considerations around safeguarding the emotional and mental wellbeing of researchers using auto/biographical approaches to investigate ‘sensitive’topics P Sikes, M Hall International Journal of Research & Method in Education 43 (2), 163-172	2020
The experiences of those affected by parental young onset dementia: A qualitative systematic literature review AV Cartwright, CR Stoner, RD Pione, A Spector Dementia 20 (7), 2618-2639	2021
Young people’s response to parental neurological disorder: a structured review L Hartman, C Jenkinson, D Morley Adolescent Health, Medicine and Therapeutics, 39-51	2020
Children and young people's experience of parental dementia: A systematic review I Chirico, G Ottoboni, M Valente, R Chattat International Journal of Geriatric Psychiatry 36 (7), 975-992	2021
Experiences and needs of children who have a parent with young onset dementia: a meta-ethnographic review C Poole, TG Patterson Clinical Gerontologist 45 (4), 750-762	2022
“Thrown Into the Deep End”: Mapping the Experiences of Young People Living in a Family Affected by a Neurological Condition P Masterson-Algar, S Williams Qualitative Health Research 30 (5), 717-729	2020
Childrens’ and young adults’ perspectives of having a parent with dementia diagnosis: A scoping review Å Grundberg, J Sandberg, ÅG Craftman Dementia 20 (8), 2933-2956	2021
Feeling invisible and ignored: Families’ experiences of marginalisation living with younger onset dementia K Hutchinson, C Roberts, P Roach Dementia as Social Experience, 46-66	2018
Identity work of children with a parent with early-onset dementia in the Netherlands: Giving meaning through narrative construction S Hoppe Dementia 21 (1), 196-213	2022
Narrative research methods with vulnerable people: sharing insights AC Framp, M McAllister, T Dwyer Nurse Researcher 27 (4)	2019
Childhood perspectives of parental young onset dementia: A qualitative data synthesis C Blake, L Hopper Dementia 21 (4), 1304-1327	2022
Young-onset dementia: A systematic review of the psychological and social impact on relatives M Wiggins, A McEwen, A Sexton Patient Education and Counseling, 107585	2022
iSupport for young carers: an adaptation of an e-Health intervention for young dementia carers P Masterson-Algar, K Egan, G Flynn, G Hughes, A Spector, J Stott, ... International Journal of Environmental Research and Public Health 20 (1), 127	2022
The experience of children with parents diagnosed with young onset dementia: a systematic literature review N Wang, J Brooke British Journal of Neuroscience Nursing 16 (4), 165-173	2020
Our whole house has Alzheimer's S Hoppe

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