‘Eat, sleep, internet and talk’: an exploratory study of play profile for children living with palliative care needs ZA Jasem, AS Darlington, D Lambrick, DC Randall Palliative Care and Social Practice 16, 26323524221105100, 2022 | 1 | 2022 |
‘This is not part of my life plan’: A qualitative study on the psychosocial experiences and practical challenges in young adults with cancer age 25 to 39 years at diagnosis E Lidington, C Vlooswijk, K Stallard, E Travis, E Younger, P Edwards, ... European Journal of Cancer Care 30 (5), e13458, 2021 | 16 | 2021 |
" Sometimes We Think About It But Don't Talk About It" Asking Adolescents And Young Adults With Cancer To Evaluate Sensitive Areas Of Life S Sodergren, O Husson, G Rohde, A Alkan, A Al Omari, I Ben-Aharon, ... Pediatric Blood & Cancer 70 (S8), S17-S17, 2023 | | 2023 |
“No official help is available” - experience of parents and children with congenital heart disease during COVID-19 LV Marino, R Wagland, DJ Culliford, T Bharucha, SC Sodergren, ... medRxiv, 2020.07. 03.20146076, 2020 | 3 | 2020 |
“No Official Help Is Available”—Experience of Parents and Children With Congenital Heart Disease During COVID-19 LV Marino, R Wagland, DJ Culliford, T Bharucha, SC Sodergren, ... World Journal for Pediatric and Congenital Heart Surgery 12 (4), 500-507, 2021 | 14 | 2021 |
571 COVID-19: Experiences of lockdown and support needs in children and young adults with kidney conditions Y Tse, ASE Darlington, K Tyerman, D Wallace, T Pankhurst, S Chantziara, ... Archives of Disease in Childhood 106 (Suppl 1), A43-A43, 2021 | | 2021 |
A critical evaluation of the content validity of patient-reported outcome measures assessing health-related quality of life in children with cancer: a systematic review M Rothmund, A Meryk, G Rumpold, R Crazzolara, S Sodergren, ... Journal of Patient-Reported Outcomes 7 (1), 2, 2023 | 10 | 2023 |
A life put on pause: an exploration of the health-related quality of life issues relevant to adolescents and young adults with cancer SC Sodergren, O Husson, GE Rohde, IM Tomaszewska, B Vivat, N Yarom, ... Journal of Adolescent and Young Adult Oncology 7 (4), 453-464, 2018 | 61 | 2018 |
A multicenter international prospective study of the validity and reliability of a COVID-19-specific health-related quality of life questionnaire CD Amdal, RS Falk, S Singer, M Pe, C Piccinin, A Bottomley, LT Appiah, ... Quality of Life Research 32 (2), 447-459, 2023 | 3 | 2023 |
A national survey exploring views and experience of health professionals about transferring patients from critical care home to die ASE Darlington, T Long-Sutehall, A Richardson, MA Coombs Palliative medicine 29 (4), 363-370, 2015 | 18 | 2015 |
A prospective study on coping strategies and quality of life in patients after stroke, assessing prognostic relationships and estimates of cost-effectiveness. ASE Darlington, DWJ Dippel, GM Ribbers, R van Balen, J Passchier, ... Journal of Rehabilitation Medicine 41 (4), 237-241, 2009 | 55 | 2009 |
A systematic review and thematic synthesis of quality of life in the informal carers of cancer patients with cachexia S Wheelwright, AS Darlington, JB Hopkinson, D Fitzsimmons, C Johnson Palliative Medicine 30 (2), 149-160, 2016 | 63 | 2016 |
A systematic review of health-related quality of life instruments in patients with cancer cachexia S Wheelwright, AS Darlington, JB Hopkinson, D Fitzsimmons, A White, ... Supportive Care in Cancer 21, 2625-2636, 2013 | 98 | 2013 |
A systematic review of the use and validation of health-related quality of life instruments in patients with cancer cachexia SJ Wheelwright, AS Darlington, JB Hopkinson, D Fitzsimmons, A White, ... QUALITY OF LIFE RESEARCH 21, 30-30, 2012 | | 2012 |
A systematic review to establish health-related quality-of-life domains for intervention targets in cancer cachexia SJ Wheelwright, AS Darlington, JB Hopkinson, D Fitzsimmons, A White, ... BMJ supportive & palliative care 6 (3), 307-314, 2016 | 32 | 2016 |
Abstract PD-038: PARENTS’EXPERIENCES OF REQUESTS FOR ORGAN AND TISSUE DONATION: EVIDENCE FROM A QUALITATIVE STUDY J Brierley, AS Darlington, T Long-Sutehall, D Randall, V Robinson Pediatric Critical Care Medicine 19 (6S), 41-42, 2018 | 1 | 2018 |
ADAPTING AND EVOLVING YOUTHWORK SUPPORT THROUGHOUT THE COVID-19 PANDEMIC S Shameti, E Stubbs, MR Haq, R Gilbert, C Anderson, AS Darlington, ... PEDIATRIC NEPHROLOGY 36 (10), 3369-3369, 2021 | | 2021 |
Adolescents and Young Adults (AYA) with cancer AS Darlington | | |
An Honest Look in the Mirror: Patient-Reported Outcome Measurements are Rarely Used in Paediatric Cancer Clinical Trials-A Systematic Review of Clinical Trial Registries M Rothmund, D Riedl, AS Darlington, S Sodergren, R Crazzolara, ... PEDIATRIC BLOOD & CANCER 68, S101-S101, 2021 | | 2021 |
An honest look in the mirror: patient-reported outcome measurements are rarely used in pediatric cancer clinical trials-a systematic review of clinical trial registries M Rothmund, D Riedl, AS Darlington, SC Sodergren, R Crazzolara, ... QUALITY OF LIFE RESEARCH 30 (SUPPL 1), S24-S24, 2021 | | 2021 |