The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET R Talarico, S Aguilera, T Alexander, Z Amoura, AM Antunes, L Arnaud, ... Nature Reviews Rheumatology 17 (3), 177-184, 2021 | 47 | 2021 |
Rare diseases under different levels of economic analysis: current activities, challenges and perspectives S Cannizzo, V Lorenzoni, I Palla, S Pirri, L Trieste, I Triulzi, G Turchetti RMD open 4 (Suppl 1), e000794, 2018 | 45 | 2018 |
RarERN Path: a methodology towards the optimisation of patients’ care pathways in rare and complex diseases developed within the European Reference Networks R Talarico, S Cannizzo, V Lorenzoni, D Marinello, I Palla, S Pirri, S Ticciati, ... Orphanet Journal of Rare Diseases 15, 1-10, 2020 | 17 | 2020 |
The added value of a European Reference Network on rare and complex connective tissue and musculoskeletal diseases: insights after the first 5 years of the ERN ReCONNET R Talarico, S Aguilera, T Alexander, Z Amoura, J Andersen, L Arnaud, ... Clinical and experimental rheumatology 40 (5 Suppl. 134), S3-S11, 2022 | 16 | 2022 |
Health information technologies in systemic lupus erythematosus: focus on patient assessment C Tani, L Trieste, V Lorenzoni, S Cannizzo, G Turchetti, M Mosca Clin Exp Rheumatol 34 (5), 54, 2016 | 13 | 2016 |
Shaping the future of rare diseases after a global health emergency: organisational points to consider R Talarico, D Marinello, S Cannizzo, A Gaglioti, S Ticciati, C Carta, ... International Journal of Environmental Research and Public Health 17 (22), 8694, 2020 | 12 | 2020 |
State of the art and future directions in assessing the quality of life in rare and complex connective tissue and musculoskeletal diseases L Trieste, S Cannizzo, I Palla, I Triulzi, G Turchetti Frontiers in medicine 9, 986218, 2022 | 9 | 2022 |
Innovation in rehabilitation technology: technological opportunities and socioeconomic implications–a theoretical model G Turchetti, B Labella, S Bellelli, S Cannizzo, I Palla, S Mazzoleni, ... International Journal of Healthcare Technology and Management 10 (4-5), 245-261, 2009 | 9 | 2009 |
Being a caregiver of a Behçet’s syndrome patient: challenges and perspectives during a complex journey R Talarico, D Marinello, A Manzo, S Cannizzo, I Palla, S Ticciati, ... Orphanet Journal of Rare Diseases 16, 1-11, 2021 | 8 | 2021 |
Early assessment of neuro-rehabilitation technology: a case study S Petroni, S Mazzoleni, S Bellelli, S Cannizzo, I Palla, B Labella, S Sterzi, ... International Journal of Biomedical Engineering and Technology 4 (3), 232-244, 2010 | 8 | 2010 |
Exploring disease perception in Behçet’s syndrome: combining a quantitative and a qualitative study based on a narrative medicine approach D Marinello, I Palla, V Lorenzoni, G Andreozzi, S Pirri, S Ticciati, ... Orphanet Journal of Rare Diseases 18 (1), 58, 2023 | 5 | 2023 |
Long-term outcomes of COVID-19 vaccination in patients with rare and complex connective tissue diseases: the ERN-Reconnet VACCINATE study C Tani, C Cardelli, R Depascale, A Gamba, L Iaccarino, A Doria, ... Journal of Translational Autoimmunity 7, 100221, 2023 | 2 | 2023 |
An overlook on the current registries for rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET M Bandeira, F Di Cianni, D Marinello, L Arnaud, S Cannizzo, C Carta, ... Frontiers in medicine 9, 889997, 2022 | 2 | 2022 |
One year in review 2020: economic and organisational aspects in rare and complex connective tissue diseases S Cannizzo, I Palla, S Pirri, I Triulzi, C Carta, D Taruscio, G Turchetti Clin Exp Rheumatol 38 (6), 1037-45, 2020 | 2 | 2020 |
Patient-reported Outcome Measures in Systemic Lupus Erythematosus: Use in Clinical Practice-Preliminary Results from the Integrate Project G Chehab, J Richter, A Kernder, C Tani, V Lorenzoni, E Elefante, I Palla, ... ARTHRITIS & RHEUMATOLOGY 71, 2019 | 2 | 2019 |
The organizational dimension in rare diseases care management: an application of RarERN Path© methodology in the rare neurological diseases Ataxia, Dystonia and Phenylketonuria S Cannizzo, V Quoidbach, M Benson, A Federico, A Filla, BS Gilroy, ... | 1 | 2023 |
An Opportunity to Harmonise the Approach to Patients' Care Pathways for Rare and Complex Diseases: RarERN Path™ R Talarico, D Marinello, S Cannizzo, I Palla, S Ticciati, A Gaglioti, A Rys, ... Frontiers in Health Services 2, 935014, 2022 | 1 | 2022 |
DD-017 Thefts of medicines from hospital pharmacies: A european challenge G Turchetti, M Pani, S Cannizzo, A Antonel, E Rossi European Journal of Hospital Pharmacy 23 (Suppl 1), A111-A112, 2016 | 1 | 2016 |
The COVID-19 pandemic impact on continuity of care provision on rare brain diseases and on ataxias, dystonia and PKU. A scoping review S Cannizzo, V Quoidbach, P Giunti, W Oertel, G Pastores, M Relja, ... Orphanet Journal of Rare Diseases 19 (1), 81, 2024 | | 2024 |
Publisher Correction: The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET R Talarico, S Aguilera, T Alexander, Z Amoura, AM Antunes, L Arnaud, ... Nature Reviews Rheumatology 18 (12), 734-734, 2022 | | 2022 |