Patient perspective on acute intermittent porphyria with frequent attacks: a disease with intermittent and chronic manifestations A Simon, F Pompilus, W Querbes, A Wei, S Strzok, C Penz, DL Howe, ... The Patient-Patient-Centered Outcomes Research 11, 527-537, 2018 | 80 | 2018 |
A pragmatic patient-reported outcome strategy for rare disease clinical trials: application of the EORTC item library to myelodysplastic syndromes, chronic myelomonocytic … JA Bell, A Galaznik, F Pompilus, S Strzok, R Bejar, F Scipione, RJ Fram, ... Journal of Patient-Reported Outcomes 3, 1-12, 2019 | 20 | 2019 |
Development of a gait module to complement the 12-item Multiple Sclerosis Walking Scale: a mixed methods study S Strzok, S Cleanthous, F Pompilus, SJ Cano, P Marquis, S Cohan, ... Multiple Sclerosis Journal–Experimental, Translational and Clinical 4 (2 …, 2018 | 7 | 2018 |
Addressing the targeting range of the ABILHAND-56 in relapsing–remitting multiple sclerosis: A mixed methods psychometric study S Cleanthous, S Strzok, F Pompilus, S Cano, P Marquis, S Cohan, ... Multiple Sclerosis Journal–Experimental, Translational and Clinical 4 (2 …, 2018 | 7 | 2018 |
Content validity and assessment of the psychometric properties and score interpretation of a pruritus numeric rating scale in atopic dermatitis G Yosipovitch, A Rams, J Baldasaro, L Bunod, L Delbecque, S Strzok, ... BRITISH JOURNAL OF DERMATOLOGY 186 (4), E145-E145, 2022 | 5 | 2022 |
The patient experience of fatigue in systemic lupus erythematosus: a conceptual model S Cleanthous, S Strzok, B Haier, S Cano, T Morel Rheumatology and therapy, 1-14, 2022 | 5 | 2022 |
Patient-Reported Outcome Measurement in Manual Ability for Multiple Sclerosis: Addressing the Targeting Issues of the ABILHAND (P3. 364) SY Chen, F Pompilus, S Strzok, S Cleanthous, S Cano, P Marquis, ... Neurology 88 (16_supplement), P3. 364, 2017 | 4 | 2017 |
Assessing Itch Severity: Content Validity and Psychometric Properties of a Patient-Reported Pruritus Numeric Rating Scale in Atopic Dermatitis A Rams, J Baldasaro, L Bunod, L Delbecque, S Strzok, J Meunier, ... Advances in Therapy 41 (4), 1512-1525, 2024 | 3 | 2024 |
The patient and clinician assessment of gastrointestinal (GI) related adverse events associated with oral disease-modifying therapies in multiple sclerosis: a qualitative study F Jivraj, S Kang, S Reedie, S Kapadia, S Strzok, E Elliott, S Cano, M Rock Advances in Therapy 39 (11), 5072-5086, 2022 | 3 | 2022 |
Development and psychometric evaluation of the assessment of self-injection questionnaire: an adaptation of the self-injection assessment questionnaire F Pompilus, A Ciesluk, S Strzok, V Ciaravino, K Harris, B Szegvari, ... Health and Quality of Life Outcomes 18, 1-11, 2020 | 3 | 2020 |
Impacts of type 1 diabetes on patients during the first two years—a qualitative research study E Senior, R Fong, A Christian, JT Markowitz, S Strzok, TIM Schmidt, ... Diabetes 67 (Supplement_1), 2018 | 3 | 2018 |
Development of a Gait Module to Complement the 12-item Patient-Reported Multiple Sclerosis Walking Scale (P1. 374) SY Chen, F Pompilus, S Strzok, S Cleanthous, S Cano, P Marquis, ... Neurology 88 (16_supplement), P1. 374, 2017 | 3 | 2017 |
Patient perspectives on symptom experience and impact on health-related quality of life in higher-risk myelodysplastic syndromes, chronic myelomonocytic leukemia and low-blast … JA Bell, A Galaznik, FA Pompilus, S Strzok, RJ Fram, DV Faller, P Marquis Blood 130, 3458, 2017 | 2 | 2017 |
Effective Patient-Focused Drug Development: An Example Based On People With Ms Collaborating With A Pharmaceutical Company P Kamudoni, RN McBurney, SL Wong, LN Kolaczkowski, H Schmidt, ... MULTIPLE SCLEROSIS JOURNAL 26 (1_ SUPPL), 42-42, 2020 | 1 | 2020 |
Expanding our understanding of daily life activity impact in patients with multiple sclerosis J Petrillo, D Cadavid, C Castrillo-Viguera, S Cleanthous, F Pompilus, ... MULTIPLE SCLEROSIS JOURNAL 23, 678-679, 2017 | 1 | 2017 |
Why we should move mixed methods in psychometric research from a three-step to a" two-step'' S Cleanthous, P Marquis, S Strzok, F Pompilus, A Regnault, S Cano QUALITY OF LIFE RESEARCH 25, 20-21, 2016 | 1 | 2016 |
Development of a conceptual framework for daily life activities in patients with early stage relapsing-remitting multiple sclerosis SY Chen, F Pompilus, S Strzok, S Cleanthous, S Cano, P Marquis, ... MULTIPLE SCLEROSIS JOURNAL 22, 690-690, 2016 | 1 | 2016 |
Sleep-loss related to itch in atopic dermatitis: assessing content validity and psychometric properties of a patient-reported sleep-loss rating scale A Rams, J Baldasaro, L Bunod, L Delbecque, S Strzok, J Meunier, ... Journal of Patient-Reported Outcomes 8 (1), 77, 2024 | | 2024 |
Content validity and assessment of the psychometric properties and score interpretation of a sleep-loss scale score in atopic dermatitis G Yosipovitch, A Rams, J Baldasaro, L Bunod, L Delbecque, S Strzok, ... BRITISH JOURNAL OF DERMATOLOGY 186 (4), E147-E148, 2022 | | 2022 |
Building effective patient engagement in drug development: an example based on people with MS collaborating with a pharmaceutical company P Kamudoni, R McBurney, S Wong, L Kolaczkowski, H Schmidt, ... QUALITY OF LIFE RESEARCH 28, S39-S40, 2019 | | 2019 |