标题/作者	年份
Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries AF Klassen, KWYW Riff, NM Longmire, A Albert, GC Allen, MA Aydin, ... Cmaj 190 (15), E455-E462	2018
Development of a new patient-reported outcome instrument to evaluate treatments for scars: the SCAR-Q AF Klassen, N Ziolkowski, LR Mundy, HC Miller, A McIlvride, A DiLaura, ... Plastic and Reconstructive Surgery Global Open 6 (4)	2018
Translation and cultural adaptation of the CLEFT-Q for use in Colombia, Chile, and Spain E Tsangaris, KWYW Riff, F Vargas, MP Aguilera, MM Alarcón, AA Cazalla, ... Health and quality of life outcomes 15, 1-13	2017
CLEFT-Q: detecting differences in outcomes among 2434 patients with varying cleft types KWYW Riff, E Tsangaris, CR Forrest, T Goodacre, NM Longmire, G Allen, ... Plastic and reconstructive surgery 144 (1), 78e-88e	2019
Effectiveness of speech intervention in patients with a cleft palate: Comparison of motor-phonetic versus linguistic-phonological speech approaches C Alighieri, K Bettens, L Bruneel, E D'haeseleer, E Van Gaever, ... Journal of Speech, Language, and Hearing Research 63 (12), 3909-3933	2020
Oral health related quality of life of children and adolescents affected by rare orofacial diseases: a questionnaire-based cohort study L Friedlander, A Berdal, P Boizeau, BA Licht, MC Manière, A Picard, ... Orphanet journal of rare diseases 14 (1), 1-13	2019
Three-dimensional computer-assisted single-splint 2-jaw cleft orthognathic surgery: toward patient-centered surgical rationale R Denadai, YR Chen, LJ Lo The Cleft Palate-Craniofacial Journal 57 (12), 1428-1433	2020
Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate at age 8+ years NM Stock, V Hammond, D Hearst, T Owen, Z Edwards, M Ridley, ... The Cleft Palate-Craniofacial Journal 57 (6), 746-752	2020
Outcomes of surgical management of palatal fistulae in patients with repaired cleft palate R Denadai, GL Zanco, CA Raposo-Amaral, CL Buzzo, ... Journal of Craniofacial Surgery 31 (1), e45-e50	2020
Health-related quality of life in patients with cleft palate: Reproducibility, responsiveness and construct validity of the Dutch version of the VELO questionnaire L Bruneel, C Alighieri, S De Smet, K Bettens, M De Bodt, K Van Lierde International Journal of Pediatric Otorhinolaryngology 119, 141-146	2019
Identifying factors most important to lower extremity trauma patients: Key concepts from the development of a patient-reported outcome instrument for lower extremity trauma, the LIMB-Q LR Mundy, A Klassen, AJ Grier, C Gibbons, W Lane, MJ Carty, AL Pusic, ... Plastic and reconstructive surgery 145 (5), 1292-1301	2020
“I smile, but without showing my teeth”: the lived experience of cleft, lip, and palate in adults AL Moi, H Gjengedal, K Lybak, H Vindenes The Cleft Palate-Craniofacial Journal 57 (7), 799-807	2020
Measuring psychological outcomes in paediatric settings: making outcomes meaningful using client-defined perspectives H Flannery, J Jacob Clinical Child Psychology and Psychiatry 25 (3), 594-603	2020
Translation and cultural adaptation of the CLEFT-Q into Arabic, Dutch, Hindi, Swedish, and Turkish E Tsangaris, KWY Wong Riff, M Dreise, M Stiernman, MN Kaur, B Piplani, ... European Journal of Plastic Surgery 41, 643-652	2018
World cleft coalition international treatment program standards SN Kassam, JL Perry, R Ayala, E Stieber, G Davies, N Hudson, ... The Cleft Palate-Craniofacial Journal 57 (10), 1171-1181	2020
Valuing patient-reported outcome measures as an intrinsically important aspect of quality improvement agenda in surgical cleft-craniofacial care R Denadai, LJ Lo Journal of Craniofacial Surgery 32 (7), 2568-2569	2021
Public perception of a normal head shape in children with sagittal craniosynostosis SZ Al-Shaqsi, A Rai, C Forrest, J Phillips Journal of Craniofacial Surgery 31 (4), 940-944	2020
Assessing health-related quality of life in patients with cleft palate in resource-limited countries: a preliminary evaluation of the VELO questionnaire in Uganda L Bruneel, C Alighieri, K Bettens, D Musasizi, I Ojok, E D'haeseleer, ... International journal of pediatric otorhinolaryngology 124, 39-46	2019
FACE-Q craniofacial module: part 1 validation of CLEFT-Q scales for use in children and young adults with facial conditions AF Klassen, C Rae, KWYW Riff, N Bulstrode, R Denadai, J Goldstein, ... Journal of Plastic, Reconstructive & Aesthetic Surgery 74 (9), 2319-2329	2021
Impact of completing CLEFT-Q scales that ask about appearance on children and young adults: an international study AF Klassen, L Dalton, TEE Goodacre, KE Harman, R Slator, E Tsangaris, ... The Cleft Palate-Craniofacial Journal 57 (7), 840-848	2020

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