标题/作者	年份
A systematic literature review to examine the potential for social media to impact HPV vaccine uptake and awareness, knowledge, and attitudes about HPV and HPV vaccination RR Ortiz, A Smith, T Coyne-Beasley Human vaccines & immunotherapeutics 15 (7-8), 1465-1475	2019
“Before Facebook and before social media… we did not know anybody else that had this”: parent perspectives on internet and social media use during the pediatric clinical genetic testing process KS Barton, A Wingerson, JR Barzilay, HK Tabor Journal of Community Genetics 10, 375-383	2019
Perspectives on Spinraza (Nusinersen) treatment study: views of individuals and parents of children diagnosed with spinal muscular atrophy M Pacione, CE Siskind, JW Day, HK Tabor Journal of Neuromuscular Diseases 6 (1), 119-131	2019
You're Doing it Wrong!: Mothering, Media, and Medical Expertise BL Johnson, MM Quinlan Rutgers University Press	2019
# ttc on Instagram: A multimodal discourse analysis of the treatment experience of patients pursuing in vitro fertilization B Johnson, MM Quinlan, N Pope Qualitative Research in Medicine and Healthcare 3 (1)	2019
Health information seeking through social media and search engines by parents of children with orofacial cleft in Nigeria AA Adekunle, O James, WL Adeyemo The Cleft Palate-Craniofacial Journal 57 (4), 444-447	2020
Awareness knowledge and attitudes of Saudi pregnant women towards cleft lip and palate NH Alnujaim Curr Pediatr Res. 21 (4), 595	2017
Analysis of Instagram® posts referring to cleft lip M Sycinska-Dziarnowska, P Stepien, J Janiszewska-Olszowska, ... International Journal of Environmental Research and Public Health 17 (20), 7404	2020
# JawSurgery: Analysis of social media use in orthognathic surgery patients O Coleman, TWM Walker, A Kerai, R Van Der Valk, SJ Thomas British dental journal 224 (8), 635-638	2018
The use of social media among parents of infants with cleft lip and/or palate S Çınar, H Boztepe Journal of Pediatric Nursing 54, e91-e96	2020
Microtia and craniofacial microsomia: content analysis of facebook groups HM Umbaugh, CE Crerand, NM Stock, DV Luquetti, CL Heike, AF Drake, ... International Journal of Pediatric Otorhinolaryngology 138, 110301	2020
Top ten tips palliative care clinicians should know about caring for children in neonatal and pediatric intensive care units A Kolmar, RM Hueckel, A Kamal, M Dickerman Journal of palliative medicine 22 (9), 1149-1153	2019
Patient and family social media use surrounding a novel treatment for a rare genetic disease: a qualitative interview study AA Iyer, JR Barzilay, HK Tabor Genetics in Medicine 22 (11), 1830-1837	2020
# Cleftlip/Palate: What Is the World Talking About? AS Hudson, AD Morzycki, R Guilfoyle The Cleft Palate-Craniofacial Journal 57 (9), 1093-1099	2020
Online cleft educational videos: Parent preferences K Spoyalo, RJM Courtemanche, E Henkelman The Cleft Palate-Craniofacial Journal 58 (4), 525-532	2021
Social media as a platform for cyberbullying of individuals with craniofacial anomalies: a preliminary survey A Jones, AM Plumb, MJ Sandage Language, speech, and hearing services in schools 52 (3), 840-855	2021
Experiences of Canadian parents of young children with cleft lip and/or palate EE Breuning, RJ Courtemanche, DJ Courtemanche The Cleft Palate-Craniofacial Journal 58 (5), 577-586	2021
Craniofacial surgery-related hashtag utilisation on Instagram S Kilcoyne, C Rogers, GPL Thomas, S Wall, D Johnson Journal of Craniofacial Surgery 32 (6), 2035-2040	2021
Connections: Social media and parents raising children with profound multiple disabilities AA Terra University of the Pacific	2020
Social media and instant messaging: An online platform for the treatment of cleft lip and palate patients; Taipei Medical University Hospital experience BS Bilal, PKT Chen Annals of plastic surgery 87 (3), 337-342	2021

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