Infrastructure resources for clinical research in amyotrophic lateral sclerosis

AV Sherman, AK Gubitz, A Al-Chalabi… - … Lateral Sclerosis and …, 2013 - Taylor & Francis
networks and their research resources were discussed. … human biospecimen collections,
also referred to as biobanks ( … fall of 2010 when several working groups of ALS experts were …

Human biomonitoring: facts and figures

World Health Organization - 2015 - apps.who.int
… biomonitoring as a complementary tool to assist evidence-based public … external quality
assessment scheme … The cost of analysis of metals in biosamples is typically less than one …

Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe …

JB Kuemmerle-Deschner, S Hansmann… - Annals of the …, 2018 - ard.bmj.com
… European framework and evidence-based guidance for its … , and standardisation of
biospecimen standard operating … for reporting of systematic reviews incorporating network meta-…

Biomarker research with prospective study designs for the early detection of cancer

B Pesch, T Brüning, G Johnen, S Casjens… - … et Biophysica Acta (BBA …, 2014 - Elsevier
… kinds of prospective studies can benefit from a biobank as they … Reports about such early-phase
studies provide scant … should network more closely in upgrading national cohort studies, …

Point-of-care technologies for precision cardiovascular care and clinical research: National Heart, Lung, and Blood Institute Working Group

KR King, LP Grazette, DN Paltoo, JT McDevitt… - JACC: Basic to …, 2016 - jacc.org
… by evidence-based medicine within a single patient journey. … with real-world biosamples,
identify normal ranges and … clinical data and relevant biobanks accessible to aid validation of …

[PDF][PDF] DIAL-BBMRI

A Cost, PB Clin - old.bbmri-eric.eu
… for transnational access, quality assurance, safety and security. … Set up working groups and
precise methodology on the … from the results of the analysis of biosamples) and that despite …

A systematic literature review of individuals' perspectives on privacy and genetic information in the United States

EW Clayton, CM Halverson, NA Sathe, BA Malin - PloS one, 2018 - journals.plos.org
… - and Spanish-speaking adults using Knowledge Network … identification of samples stored
in a cancer tissue biobank. [70] … [94, 95] In 2015 the Working Group of the Precision Medicine …

Biobanks in Chronic Disease Management: A Comprehensive Review of Strategies, Challenges, and Future Directions

W Xu, X Liang, L Chen, W Hong, X Hu - Heliyon, 2024 - cell.com
… The significance of imaging biobanks is particularly pronounced in the realm of evidence-based
medicine, where they contribute immensely to the identification and validation of …

Key questions about the future of laboratory medicine in the next decade of the 21st century: a report from the IFCC-Emerging Technologies Division

RF Greaves, S Bernardini, M Ferrari, P Fortina… - Clinica Chimica …, 2019 - Elsevier
… the role of different sample types, drones, and biobanks. The … quality assurance, risk
management, technology assessment, … ensuring the best quality for the banked biospecimens. …

NHLBI-CMREF Workshop Report on Pulmonary Vascular Disease Classification: JACC State-of-the-Art Review

WM Oldham, AR Hemnes, MA Aldred, J Barnard… - Journal of the American …, 2021 - jacc.org
… by evidence-based medicine within a single patient journey. … methods, a national effort to
coordinate biosamples and data, a … This report summarizes the working group’s major findings (…