Physical and emotional burden of rheumatoid arthritis: data from RA matters, a web-based survey of patients and healthcare professionals
R Alten, M van de Laar, F De Leonardis, N Tietz… - Rheumatology and …, 2019 - Springer
Introduction This survey assessed the impact of rheumatoid arthritis (RA) on the lives of
patients based on the perceptions of both patients and healthcare professionals (HCPs) …
patients based on the perceptions of both patients and healthcare professionals (HCPs) …
Digital crowdsourcing: unleashing its power in rheumatology
M Krusche, GR Burmester, J Knitza - Annals of the rheumatic diseases, 2020 - ard.bmj.com
The COVID-19 pandemic forces the whole rheumatic and musculoskeletal diseases
community to reassemble established treatment and research standards. Digital …
community to reassemble established treatment and research standards. Digital …
What do patients prefer? A multinational, longitudinal, qualitative study on patient-preferred treatment outcomes in early rheumatoid arthritis
K Van der Elst, EGE Mathijssen, E Landgren… - RMD open, 2020 - rmdopen.bmj.com
Objectives To explore treatment outcomes preferred by patients with early rheumatoid
arthritis (RA) and how these change throughout the early disease stage across three …
arthritis (RA) and how these change throughout the early disease stage across three …
Everyday ethics and help-seeking in early rheumatoid arthritis
A Townsend, P Adam, SM Cox, LC Li - Chronic illness, 2010 - journals.sagepub.com
Background: Sociological understandings of chronic illness have revealed tensions and
complexities around help-seeking. Although ethics underpins healthcare, its application in …
complexities around help-seeking. Although ethics underpins healthcare, its application in …
Participation in clinical research registries: a focus group study examining views from patients with arthritis and other chronic illnesses
SB Lee, A Zak, MD Iversen, VL Polletta… - Arthritis Care & …, 2016 - Wiley Online Library
Objective Patient registries have contributed substantially to progress in clinical research in
rheumatic diseases. However, not much is known about how to optimize the patient …
rheumatic diseases. However, not much is known about how to optimize the patient …
Experiences of chronic low back pain: a meta-ethnography of qualitative research
P MacNeela, C Doyle, D O'Gorman… - Health psychology …, 2015 - Taylor & Francis
Chronic low back pain (CLBP) is associated with a number of costly disability-related
outcomes. It has received increasing attention from qualitative researchers studying its …
outcomes. It has received increasing attention from qualitative researchers studying its …
Validating English-and Spanish-language patient-reported outcome measures in underserved patients with rheumatic disease
GR Wallen, KR Middleton, MV Rivera-Goba… - Arthritis Research & …, 2011 - Springer
Introduction Rheumatic diseases are among the most common and debilitating health
problems in the United States. These diseases are chronic, can result in severe decrements …
problems in the United States. These diseases are chronic, can result in severe decrements …
Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field
N Mays, C Pope, J Popay - Journal of health services …, 2005 - journals.sagepub.com
Policy-makers and managers have always used a wide range of sources of evidence in
making decisions about policy and the organization of services. However, they are under …
making decisions about policy and the organization of services. However, they are under …
Conducting a meta-ethnography of qualitative literature: lessons learnt
Background Qualitative synthesis has become more commonplace in recent years. Meta-
ethnography is one of several methods for synthesising qualitative research and is being …
ethnography is one of several methods for synthesising qualitative research and is being …
A methodological systematic review of what's wrong with meta-ethnography reporting
EF France, N Ring, R Thomas, J Noyes… - BMC medical research …, 2014 - Springer
Background Syntheses of qualitative studies can inform health policy, services and our
understanding of patient experience. Meta-ethnography is a systematic seven-phase …
understanding of patient experience. Meta-ethnography is a systematic seven-phase …