The development and evaluation of an online healthcare toolkit for autistic adults and their primary care providers

C Nicolaidis, D Raymaker, K McDonald, S Kapp… - Journal of general …, 2016 - Springer
Background The healthcare system is ill-equipped to meet the needs of adults on the autism
spectrum. Objective Our goal was to use a community-based participatory research (CBPR) …

Comparison of healthcare experiences in autistic and non-autistic adults: a cross-sectional online survey facilitated by an academic-community partnership

C Nicolaidis, D Raymaker, K McDonald, S Dern… - Journal of general …, 2013 - Springer
ABSTRACT BACKGROUND Little is known about the healthcare experiences of adults on
the autism spectrum. Moreover, autistic adults have rarely been included as partners in …

Mental health Project ECHO Autism: Increasing access to community mental health services for autistic individuals

NG Dreiling, ML Cook, E Lamarche, LG Klinger - Autism, 2022 - journals.sagepub.com
Despite the high prevalence of co-occurring autism spectrum disorders and mental health
condition (s), there exist substantial barriers to mental health treatment for autistic …

“Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum

C Nicolaidis, DM Raymaker, E Ashkenazy… - …, 2015 - journals.sagepub.com
Our objective was to obtain an in-depth understanding of autistic adults' experiences with
healthcare and their recommendations for improving care. Our academic–community …

A systematic review of interventions to improve healthcare experiences and access in autism

C Walsh, P O'Connor, E Walsh, S Lydon - Review Journal of Autism and …, 2023 - Springer
Autistic individuals report barriers to accessing and receiving healthcare, and experience
increased morbidity and mortality. This systematic review synthesizes 31 research studies …

How to improve healthcare for autistic people: A qualitative study of the views of autistic people and clinicians

D Mason, B Ingham, H Birtles, C Michael, C Scarlett… - …, 2021 - journals.sagepub.com
Autism spectrum condition is associated with co-occurring physical health conditions and
premature mortality. Autistic people experience multiple barriers to accessing healthcare …

Co-design of an NHS primary care health check for autistic adults

H Taylor, B Ingham, D Mason, T Finch, C Wilson… - …, 2023 - journals.sagepub.com
Autistic people experience more health conditions and earlier mortality. This study
investigated views about a primary care health check for autistic adults to inform its design …

Development and psychometric testing of the AASPIRE adult autism healthcare provider self-efficacy scale

C Nicolaidis, G Schnider, J Lee, DM Raymaker… - …, 2021 - journals.sagepub.com
Our objective was to develop a measure of healthcare providers' self-efficacy in providing
healthcare to autistic adults and to better understand their training needs. We used a …

“I wouldn't know where to start”: Perspectives from clinicians, agency leaders, and autistic adults on improving community mental health services for autistic adults

BB Maddox, S Crabbe, RS Beidas… - …, 2020 - journals.sagepub.com
Most autistic adults struggle with mental health problems, and traditional mental health
services generally do not meet their needs. This study used qualitative methods to identify …

Barriers to healthcare: Instrument development and comparison between autistic adults and adults with and without other disabilities

DM Raymaker, KE McDonald, E Ashkenazy… - …, 2017 - journals.sagepub.com
Our objective was to use a community-based participatory research approach to identify and
compare barriers to healthcare experienced by autistic adults and adults with and without …