A Protocol for the Inclusion of Minoritized Persons in Alzheimer Disease Research From the ADNI3 Diversity Taskforce

OC Okonkwo, MR Mindt, MT Ashford, C Conti… - JAMA network …, 2024 - jamanetwork.com
Importance Black or African American (hereinafter, Black) and Hispanic or Latino/a/x
(hereinafter, Latinx) adults are disproportionally affected by Alzheimer disease, but most …

[HTML][HTML] Underrepresentation of African-Americans in Alzheimer's trials: a call for affirmative action

J Shin, PM Doraiswamy - Frontiers in aging neuroscience, 2016 - frontiersin.org
Personalized medicine aims to tailor diagnosis and treatment based on an individual's
personal genetic make-up and other predictive biomarkers—rather than a one-size fits all …

Use of critical race theory to inform the recruitment of Black/African American Alzheimer's disease caregivers into community-based research

LJ Parker, JE Gaugler, LN Gitlin - The Gerontologist, 2022 - academic.oup.com
Nearly 30 years after the 1993 National Institute of Health (NIH) Revitalization Act, which
required the inclusion of women and racial/ethnic minority groups into government-funded …

[HTML][HTML] Together we make the difference: national strategy for recruitment and participation in Alzheimer's and related dementias clinical research

CL Elliott - Ethnicity & disease, 2020 - ncbi.nlm.nih.gov
Abstract The National Alzheimer's Project Act identifies the effective treatment and
prevention of Alzheimer's by 2025 as an urgent public health mission. This priority is …

Perspective on the “African American participation in Alzheimer disease research: Effective strategies” workshop, 2018

A Denny, M Streitz, K Stock… - Alzheimer's & …, 2020 - Wiley Online Library
Abstract The Washington University School of Medicine Knight Alzheimer Disease Research
Center's “African American Participation in Alzheimer Disease Research: Effective …

[HTML][HTML] Addressing disparities in Alzheimer's disease and African-American participation in research: an asset-based community development approach

G Green-Harris, SL Coley, RL Koscik… - Frontiers in Aging …, 2019 - frontiersin.org
Alzheimer's Disease and related dementias (ADRD) remain a worldwide burden to address
for persons with ADRD, their family members, and others at risk. ADRD should be …

A cultural approach to dementia—insights from US Latino and other minoritized groups

C Vila-Castelar, JT Fox-Fuller… - Nature Reviews …, 2022 - nature.com
Alzheimer disease and related dementias present considerable challenges to health-care
and medical systems worldwide. In the USA, older Black and Latino individuals are more …

Facilitators, challenges, and messaging strategies for Hispanic/Latino populations participating in Alzheimer's disease and related dementias clinical research: a …

HA Massett, AK Mitchell, L Alley… - Journal of …, 2021 - content.iospress.com
Alzheimer's disease and Alzheimer's disease-related dementias (AD/ADRD)
disproportionally affect Hispanic and Latino populations, yet Hispanics/Latinos are …

[HTML][HTML] Racial and ethnic differences in trends in dementia prevalence and risk factors in the United States

C Chen, JM Zissimopoulos - … & Dementia: Translational Research & Clinical …, 2018 - Elsevier
Introduction Disparities in dementia prevalence across racial/ethnic groups in the United
States may not be narrowing over time. Methods Data from Health and Retirement Study …

[HTML][HTML] Race-and sex-based disparities in Alzheimer's disease clinical trial enrollment in the United States and Canada: an indigenous perspective

NL Olson, BC Albensi - Journal of Alzheimer's Disease …, 2020 - content.iospress.com
Randomized clinical trials (RCT) involve labor-intensive, highly regulated, and controlled
processes intended to transform scientific concepts into clinical outcomes. To be effective …