… Biobank governance is by no means a complete success … of biobank development, so far
the political history of biobanks, … to create regulatory structures for biobanks on a national level. …

… 1: empirical study focused on evaluating biobank governance in practice). We clustered the
studies according to the nine biobank governance areas mentioned above. Furthermore, we …

… Our biobank governance perspective is comparative and we emphasize that from … attention
on issues of biobank governance from an international comparative perspective. We hope …

… We suggest that biobank governance consists of a multiplicity of ordering processes that
overlap to a significant degree but nevertheless operate in different domains. In fact, much can …

… donors to biobanks—they are collaborators at the heart of biobanking with an important
voice to identify perspective, which can be an extremely valuable resource for all biobanks to …

… the governance of RD biobanks is beyond the scope of this paper, basic elements can be
grouped into internal and external governance mechanisms. Internal governance mechanisms …

… For these same reasons, European biobanks are well suited … biobank research from an
ethical and a legal perspective, specifically, population biobanks, ethical frameworks for biobank …

… of biobank governance emerging … biobank governance, but they do contribute substantially
to the ongoing dialogue that must accompany the organic process that is biobank governance…

… ’ trustworthiness to stakeholders and the public in a long-term perspective. Given the ever-…
, we recommend that biobanks increase their efforts to future-proof their governance. …

… biobanks. This article analyzes the access governance arrangements of the original five
biobank … This is because these arrangements are not designed from the perspective of the …