The TRIO framework: conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making

R Laidsaar-Powell, P Butow, C Charles, A Gafni… - Patient education and …, 2017 - Elsevier
Patient education and counseling, 2017Elsevier
Objective Family caregivers are regularly involved in cancer consultations and treatment
decision-making (DM). Yet there is limited conceptual description of caregiver
influence/involvement in DM. To address this, an empirically-grounded conceptual
framework of triadic DM (TRIO Framework) and corresponding graphical aid (TRIO Triangle)
were developed. Methods Jabareen's model for conceptual framework development
informed multiple phases of development/validation, incorporation of empirical research and …
Objective
Family caregivers are regularly involved in cancer consultations and treatment decision-making (DM). Yet there is limited conceptual description of caregiver influence/involvement in DM. To address this, an empirically-grounded conceptual framework of triadic DM (TRIO Framework) and corresponding graphical aid (TRIO Triangle) were developed.
Methods
Jabareen’s model for conceptual framework development informed multiple phases of development/validation, incorporation of empirical research and theory, and iterative revisions by an expert advisory group.
Results
Findings coalesced into six empirically-grounded conceptual insights: i) Caregiver influence over a decision is variable amongst different groups; ii) Caregiver influence is variable within the one triad over time; iii) Caregivers are involved in various ways in the wider DM process; iv) DM is not only amongst three, but can occur among wider social networks; v) Many factors may affect the form and extent of caregiver involvement in DM; vi) Caregiver influence over, and involvement in, DM is linked to their everyday involvement in illness care/management.
Conclusion
The TRIO Framework/Triangle may serve as a useful guide for future empirical, ethical and/or theoretical work.
Practice implications
This Framework can deepen clinicians’s and researcher’s understanding of the diverse and varying scope of caregiver involvement and influence in DM.
Elsevier
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