Will I or my loved one die? Concordant awareness between terminal cancer patients and their caregivers is associated with lower patient anxiety and caregiver …

C Lai, P Aceto, GR Pellicano, G Servidei… - European Journal of …, 2022 - Wiley Online Library
C Lai, P Aceto, GR Pellicano, G Servidei, A Gambardella, L Lombardo
European Journal of Cancer Care, 2022Wiley Online Library
Objective The aims of this study were to investigate the association between patients'
awareness of their terminal illness and the levels of anxiety and depression, whether the
concordance between the patients' and caregivers' belief about the patient's terminal illness
was associated with patient's anxiety and depression, and with the caregiver burden.
Method The study recruited 31 terminally ill patients with cancer along with their caregivers
from a Palliative Care Unit. All data about patients and caregivers' awareness of the illness …
Objective
The aims of this study were to investigate the association between patients' awareness of their terminal illness and the levels of anxiety and depression, whether the concordance between the patients' and caregivers' belief about the patient's terminal illness was associated with patient's anxiety and depression, and with the caregiver burden.
Method
The study recruited 31 terminally ill patients with cancer along with their caregivers from a Palliative Care Unit. All data about patients and caregivers' awareness of the illness, patients' depression and anxiety, and caregiver burden were collected.
Results
Patients aware of their short‐term prognosis of death showed lower levels of anxiety than the unaware ones, especially women. Aware patients with concordant caregivers showed lower levels of anxiety but not of depression. Caregivers concordant with the patients' awareness presented lower levels of strain and burden. Finally, terminal patients who had an adult child caregiver were less likely to be aware of their terminal condition.
Conclusions
It appears that illness awareness and the caregiver's concordance with the patient's belief on the terminal condition are associated with lower anxiety, especially in women, and a reduced burden for caregivers.
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