Cerebral palsy registries

C Cans, G Surman, V McManus, D Coghlan… - Seminars in pediatric …, 2004 - Elsevier
Cerebral palsy (CP) registers appear to be appropriate tools for answering questions regarding
the prevalence and characteristics of this common childhood disability. Registers are …

[HTML][HTML] Systematic review of cerebral palsy registries/surveillance groups: relationships between registry characteristics and knowledge dissemination

DS Hurley, T Sukal-Moulton… - … journal of physical …, 2015 - ncbi.nlm.nih.gov
… summary of research disseminated by cerebral palsy registries and surveillance programs,
… of Cerebral Palsy (CP) through research themes and within the ICF framework. CP registries/…

Predictors for early diagnosis of cerebral palsy from national registry data

JB Granild‐Jensen, G Rackauskaite… - … Medicine & Child …, 2015 - Wiley Online Library
Aim As early intervention is important in cerebral palsy ( CP ), an early diagnosis is desirable.
The aim of this study was to establish the median diagnostic age of CP and to identify …

Comorbidities in cerebral palsy: a patient registry study

SJ Hollung, IJ Bakken, T Vik, S Lydersen… - … Medicine & Child …, 2020 - Wiley Online Library
… the Norwegian national quality medical registries,13 where … , in cooperation with the Cerebral
Palsy Registry of Norway.3 … in the NPR and the Cerebral Palsy Registry of Norway.3 On the …

A registry-based assessment of cerebral palsy and cerebral malformations

L Self, MI Shevell… - Journal of child …, 2010 - journals.sagepub.com
… malformations are 1 of the many possible causes of cerebral palsy. In this study, a … palsy
registry was used to identify children whose cerebral palsy could be attributed to a cerebral

An international survey of cerebral palsy registers and surveillance systems

…, Australian Cerebral Palsy Register Group - … Medicine & Child …, 2016 - Wiley Online Library
Cerebral palsy (CP) is a heterogeneous neurological condition with many aetiologies. …
The first large network of CP surveillance programmes, the Surveillance of Cerebral Palsy in …

The cerebral palsy research registry: development and progress toward national collaboration in the United States

DS Hurley, T Sukal-Moulton, ME Msall… - Journal of child …, 2011 - journals.sagepub.com
cerebral palsy registries and promote research in the field. This is accomplished by connecting
persons with cerebral palsy, … of an expandable cerebral palsy research registry, its current …

[HTML][HTML] Cerebral palsy research network clinical Registry: methodology and baseline report

P Gross, M Gannotti, A Bailes, SD Horn, J Kean… - … Research and Clinical …, 2020 - Elsevier
registry that contains the patient and treatment characteristics needed for QI and CER. The
Cerebral Palsy Research Network registry … The resultant registry is available for any institution …

Development of a cerebral palsy follow‐up registry in Jordan (CPUP‐Jordan)

NA Almasri, M Saleh, S Abu‐Dahab… - Child: Care, Health …, 2018 - Wiley Online Library
… In 2013, a proposal to develop a cerebral palsy follow-up registry programme for children …
a) provide foundations of a national cerebral palsy registry in Jordan utilizing similar framework …

Distribution of motor types in cerebral palsy: how do registry data compare?

SM Reid, JB Carlin… - … Medicine & Child …, 2011 - Wiley Online Library
… a population-based registry of children with cerebral palsy (CP), … identified from the Victorian
Cerebral Palsy Register, 3297 of … between 29 individual CP registries, mainly because of …