An overview of human genetic privacy

X Shi, X Wu - Annals of the New York Academy of Sciences, 2017 - Wiley Online Library
… In this paper, we provide an overview of genetic privacy from various perspectives. As
illustrated in Figure 1, we found a rapid accumulation in human genomic data from private and …

Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States

S Wang, X Jiang, S Singh, R Marmor… - Annals of the New …, 2017 - Wiley Online Library
privacy groups, together with biomedical, genetics, … human genome, cryptographic
technologies can be efficiently optimized to handle large-scale, privacy-preserving human genomic

Genetic privacy

LO Gostin - Journal of Law, Medicine & Ethics, 1995 - cambridge.org
… data from the human genome while also protecting individual, family, and group privacy. This
article … the need for genomic information and the need for privacy exists. Because absolute …

The most personal information of all: an appraisal of genetic privacy in the shadow of the human genome project

GT Laurie - International Journal of Law, Policy and the Family, 1996 - academic.oup.com
Human Genome Project was established with the ambitious aim of mapping and sequencing
the entire chain of human … have been tests kits for genetic diseases and conditions. These …

Privacy challenges and research opportunities for genomic data sharing

L Bonomi, Y Huang, L Ohno-Machado - Nature genetics, 2020 - nature.com
… Clarification of the potential risks and mitigating solutions when human genome data are
shared should help policy makers accept tradeoffs between data access and the privacy of the …

Privacy in the genomic era

M Naveed, E Ayday, EW Clayton, J Fellay… - ACM Computing …, 2015 - dl.acm.org
… their expertise in genomics/genetics and security/privacy. We show these results in Figure
3. … In this section, we survey a wide spectrum of privacy threats to human genomic data, as …

Genetic Privacy in the Big Biology Era: The Autonomous Human Subject

M Cech - Hastings LJ, 2018 - HeinOnline
… While scientists are revolutionizing medicine with the discovery of the human genome,
ethicists and the scientific community are beginning to question whether the escalating costs to …

The law of genetic privacy: applications, implications, and limitations

EW Clayton, BJ Evans, JW Hazel… - Journal of Law and the …, 2019 - academic.oup.com
… principles for genetic privacy. This article examines the current landscape of genetic privacy
to … From the huge dataset that is every human's genome to family pedigrees and genetic test …

Three decades of genetic privacy: a metaphoric journey

BM Knoppers, MJS Beauvais - Human Molecular Genetics, 2021 - academic.oup.com
genetic information, we examine the metaphors used in these debates to chronicle the
development of genetic privacy. … the launch of the Human Genome Project and related endeavors. …

The right to genetic privacy--are we unlocking the secrets of the human genome only to risk insurance and employment discrimination

N Smith - Utah L. Rev., 2000 - HeinOnline
… than 4,000 genetic diseases ... as well as the many [other] diseases in which genetic
predisposition plays an important role. '33 Because of the Human Genome Project, genetic testing …