Objective A stakeholder group for persons living with dementia (PLWD) was convened to
support the work of a major US dementia research meeting. The objectives of this …

Objective Inclusion of patients in research activities has increased in the United States but
no guidelines for inclusion of individuals with cognitive impairment exist. The experiences …

Background The objective of this paper is to describe the activities, challenges and
mitigation strategies, lessons learned and reflections on the importance of engagement from …

The current article reports the consensus recommendations from individuals living with
dementia and their care partners on priorities for public policy and research funding, which …

Abstract Background The National Institute on Aging, in conjunction with the Department of
Health and Human Services as part of the National Alzheimer's Project Act, convened a …

This report to the Advisory Council on Alzheimer's Research, Care and Services presents
the results of the first National Research Summit on Care, Services, and Supports for …

Objectives The purpose of this study was to partner with stakeholders to identify gaps in care
for persons living with dementia and their family caregivers and from this list, identify …

Background Evidence‐based models for providing effective and comprehensive care for
Alzheimer's disease and related dementias exist but have yet to be successfully …

Abstract The first National Research Summit on Care, Services, and Supports for Persons
with Dementia and Their Caregivers was held on October 16-17, 2017, at the National …

Traditionally, people with dementia and their caregivers are the subjects of research but do
not participate in devising the research. More recently, new models give people with …