[HTML][HTML] Recruitment and retention of underrepresented populations in Alzheimer's disease research: a systematic review

AL Gilmore-Bykovskyi, Y Jin, C Gleason… - Alzheimer's & Dementia …, 2019 - Elsevier
Introduction Alzheimer's disease and related dementias (ADRD) disproportionately impact
racial and ethnic minority and socioeconomically disadvantaged adults. Yet, these …

Modifiable barriers for recruitment and retention of older adults participants from underrepresented minorities in Alzheimer's disease research

KK Indorewalla, MK O'Connor… - Journal of …, 2021 - content.iospress.com
Clinical Alzheimer's disease (AD) trials currently face a critical shortfall of thousands of
eligible participants, which inflates the duration and cost of the clinical study as well as …

Gaining and sustaining minority participation in longitudinal research projects

MA Gauthier, WP Clarke - Alzheimer Disease & Associated …, 1999 - journals.lww.com
African-Americans are often not enthusiastic about participating in Alzheimer disease
research due to past exploitation from medical and public health studies. To assure …

Facilitating Alzheimer disease research recruitment

JD Grill, JE Galvin - Alzheimer Disease & Associated Disorders, 2014 - journals.lww.com
Alzheimer disease (AD) research faces challenges to successful enrollment, especially to
clinical trials and biomarker studies. Failure to recruit the planned number of participants in a …

Including ethnic minorities in dementia research: Recommendations from a scoping review

B Brijnath, S Croy, J Sabates, A Thodis… - … Research & Clinical …, 2022 - Wiley Online Library
Introduction Ethnicity influences dementia etiology, prognosis, and treatment, while culture
shapes help‐seeking and care. Despite increasing population diversity in high‐income …

Disparities by race and ethnicity among adults recruited for a preclinical Alzheimer disease trial

R Raman, YT Quiroz, O Langford, J Choi… - JAMA Network …, 2021 - jamanetwork.com
Importance Underrepresentation of many racial/ethnic groups in Alzheimer disease (AD)
clinical trials limits generalizability of results and hinders opportunities to examine potential …

Representativeness of samples enrolled in Alzheimer's disease research centers

M Arce Rentería, TM Mobley… - Alzheimer's & …, 2023 - Wiley Online Library
To generalize findings on the mechanisms and prognosis in Alzheimer's disease and
related dementias (ADRD), it is critical for ADRD research to be representative of the …

The Alzheimer's Prevention Registry: a large internet-based participant recruitment registry to accelerate referrals to Alzheimer's-focused studies

JB Langbaum, N High, J Nichols… - The journal of …, 2020 - Springer
Abstract Background Recruitment for Alzheimer's disease (AD)-focused studies, particularly
prevention studies, is challenging due to the public's lack of awareness about study …

Barriers and facilitators of African American participation in Alzheimer disease biomarker research

MM Williams, DP Scharff, KJ Mathews… - Alzheimer Disease & …, 2010 - journals.lww.com
African Americans experience a greater risk of Alzheimer disease (AD), but are
underrepresented in AD research. Our study examined barriers and facilitators of AD …

Recruitment of a community-based cohort for research on diversity and risk of dementia

L Hinton, K Carter, BR Reed, L Beckett… - Alzheimer Disease & …, 2010 - journals.lww.com
We describe the history, development, and success of the recruitment and screening
procedures used by researchers at the University of California, Davis Alzheimer's Disease …