Parent-reported quality of life of children with cerebral palsy in Europe

C Arnaud, M White-Koning, SI Michelsen, J Parkes… - …, 2008 - publications.aap.org
OBJECTIVE. The goal was to determine whether the type and severity of the child's
impairments and the family's psychosocial, social, and economic characteristics influence …

Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy

M White-Koning, C Arnaud, HO Dickinson… - …, 2007 - publications.aap.org
OBJECTIVES. The differences between child self-reports and parent proxy reports of quality
of life in a large population of children with cerebral palsy were studied. We examined …

Reliability in the ratings of quality of life between parents and their children of school age with cerebral palsy

A Majnemer, M Shevell, M Law, C Poulin… - Quality of life …, 2008 - Springer
Background Quality of life is recognized as an important outcome of health services. Ideally,
the child's perspectives should be sought directly to define their quality of life; however, this …

Parent and professional reports of the quality of life of children with cerebral palsy and associated intellectual impairment

M White‐Koning, H Grandjean… - … Medicine & Child …, 2008 - Wiley Online Library
To examine parent‐professional agreement in proxy‐reports of child quality of life (QoL) and
the factors associated with low child QoL in children with cerebral palsy (CP) and associated …

Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis

A Colver, M Rapp, N Eisemann, V Ehlinger, U Thyen… - The Lancet, 2015 - thelancet.com
Background Children with cerebral palsy who can self-report have similar quality of life
(QoL) to their able-bodied peers. Is this similarity also found in adolescence? We examined …

Quality of life in children and adolescents with cerebral palsy: a systematic review with meta-analysis

T Makris, D Dorstyn, A Crettenden - Disability and rehabilitation, 2021 - Taylor & Francis
Background Cerebral palsy has been linked to decreased quality of life. However use of self-
versus proxy-perspectives and norm-sample comparisons to examine quality of life impact …

Determinants of life quality in school-age children with cerebral palsy

A Majnemer, M Shevell, P Rosenbaum, M Law… - The Journal of …, 2007 - Elsevier
OBJECTIVE: To characterize the quality of life of children with cerebral palsy from the
parents' and children's perspectives. STUDY DESIGN: Ninety-five children were recruited; a …

Measuring the quality of life of children with cerebral palsy: comparing the conceptual differences and psychometric properties of three instruments

E Davis, AMY Shelly, E Waters… - … Medicine & Child …, 2010 - Wiley Online Library
Aim To compare the conceptual differences, internal consistency, and validity of the
Cerebral Palsy Quality of Life Questionnaire for Children (CP QOL‐Child), the Child Health …

Parent proxy‐reported quality of life for children with cerebral palsy: is it related to parental psychosocial distress?

E Davis, A Mackinnon, E Waters - Child: care, health and …, 2012 - Wiley Online Library
Background Parent‐proxy reports of quality of life (QOL) are often used to guide decisions
about children with cerebral palsy (CP), although little is known about the factors that …

The psychosocial well-being of parents of children with cerebral palsy: a comparison study

A Cheshire, JH Barlow, LA Powell - Disability and rehabilitation, 2010 - Taylor & Francis
Purpose. Parents of children with cerebral palsy (CP) may be at risk from poor psychosocial
well-being, compared with parents of children without a long-term health condition (LTHC) …