Communicating the Results of Clinical Research to Participants: Attitudes, Practices, and Future
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Background: Participants in health research studies typically express interest in receiving
the results from the studies in which they participate. However, participants' preferences and …

Background Clinical research exposes patient participants to unproved methods and
research procedures in order to gather generalizable knowledge to benefit others. While …

Eric P. Winer, MD OF THE 1.3 MILLION INDIVIDUALS DIAGNOSED WITH cancer each year
in the United States, 1 a substan-tial minority participate in clinical trials. 2, 3 When patients …

Health research participants want the results of the studies in which they participate but do
not typically receive them. Researchers generally express support for sharing results with …

Clinical trialists' concerns about data sharing can be addressed through steps such as
provision of necessary resources, appropriate acknowledgment and academic rewards …

Background Significant efforts are underway within the biomedical research community to
encourage sharing and reuse of research data in order to enhance research reproducibility …

The rapid development of new drugs, therapies, and devices has created a dramatic
increase in the number of clinical research studies that highlights the need for greater …

The above is a hypothetical example of a well-conceived, rigorous study with solid outcomes
whose investigators find themselves at a loss for why they cannot move its findings into …

Effectiveness and outcomes research seeks to improve patients' health outcomes by
improving the quality of the health care they receive. Dissemination of the findings of such …