Toward a roadmap in global biobanking for health

JR Harris, P Burton, BM Knoppers… - European Journal of …, 2012 - nature.com
Biobanks can have a pivotal role in elucidating disease etiology, translation, and advancing
public health. However, meeting these challenges hinges on a critical shift in the way …

The evolution of a large biobank at Mass General Brigham

NT Boutin, SB Schecter, EF Perez… - Journal of Personalized …, 2022 - mdpi.com
The Mass General Brigham Biobank (formerly Partners HealthCare Biobank) is a large
repository of biospecimens and data linked to extensive electronic health record data and …

Biobanks and personalized medicine

JE Olson, SJ Bielinski, E Ryu, EM Winkler… - Clinical …, 2014 - Wiley Online Library
We provide a mini‐review of how biobanks can support clinical genetics in the era of
personalized medicine. We discuss types of biobanks, including disease specific and …

[HTML][HTML] A call for global governance of biobanks

H Chen, T Pang - Bulletin of the World Health Organization, 2014 - SciELO Public Health
The progress in genomic research has led to increased sampling and storage of biological
samples in biobanks. Most biobanks are located in high-income countries, but the …

Biobanking for epidemiological research and public health

AM Brand, NM Probst-Hensch - Pathobiology, 2007 - karger.com
Almost all healthcare systems are currently facing fundamental challenges. New ways of
organizing these systems based on novel knowledge and stakeholders' different needs are …

The social and ethical issues of post-genomic human biobanks

A Cambon-Thomsen - Nature Reviews Genetics, 2004 - nature.com
Biobanking—the organized collection of biological samples and associated data—ranges in
scope from small collections of samples in academic or hospital settings to large-scale …

Community engagement in biobanking: experiences from the eMERGE network

AA Lemke, JT Wu, C Waudby, J Pulley… - Genomics, Society and …, 2010 - Springer
Advances in genomic technologies and the promise of" personalised medicine" have
spurred the interest of researchers, healthcare systems, and the general public. However …

Biobanks: importance, implications and opportunities for genetic counselors

AK Hawkins - Journal of genetic counseling, 2010 - Springer
Biobanks are collections of human biological tissue specimens and related health data.
Biobank research hopes to provide novel insights into the genetic component of disease …

Toward a common language for biobanking

MN Fransson, E Rial-Sebbag, M Brochhausen… - European Journal of …, 2015 - nature.com
To encourage the process of harmonization, the biobank community should support and use
a common terminology. Relevant terms may be found in general thesauri for medicine, legal …

[图书][B] Ethical issues in governing biobanks: global perspectives

B Elger, N Biller-Andorno, AM Capron - 2016 - api.taylorfrancis.com
Population genomics research drawing on genetic databases has expanded rapidly, with
some of this information being combined in'biobanks'. Managing this information in an …