[HTML][HTML] “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family …
E Harrop, F Morgan, A Byrne, A Nelson - BMC palliative care, 2016 - Springer
Background Research suggests that there may be bereavement experiences and support
needs which are specific to family caregivers providing end of life care (EoLC), although this …
needs which are specific to family caregivers providing end of life care (EoLC), although this …
[HTML][HTML] Honoring the voices of bereaved caregivers: a metasummary of qualitative research
L Holtslander, S Baxter, K Mills, S Bocking… - BMC Palliative Care, 2017 - Springer
Background Family caregiving in the context of advanced disease in particular, can be
physically and emotionally taxing. Caregivers can subsequently face bereavement …
physically and emotionally taxing. Caregivers can subsequently face bereavement …
[HTML][HTML] The effect of caregiving on bereavement outcome: study protocol for a longitudinal, prospective study
LJ Breen, SM Aoun, M O'Connor - BMC Palliative Care, 2015 - Springer
Background The aim of the current study is to determine the effects of caregiving on
bereavement outcome. The study will address two important gaps in the research …
bereavement outcome. The study will address two important gaps in the research …
The potential therapeutic value for bereaved relatives participating in research: An exploratory study
A Germain, CR Mayland, BA Jack - Palliative & supportive care, 2016 - cambridge.org
Objective: Conducting research with the bereaved presents an immediate ethical challenge,
as they are undoubtedly a vulnerable group, associated with high levels of distress and …
as they are undoubtedly a vulnerable group, associated with high levels of distress and …
[HTML][HTML] End-of-life care research with bereaved informal caregivers–analysis of recruitment strategy and participation rate from a multi-centre validation study
S Stiel, M Heckel, S Bussmann, M Weber… - BMC palliative care, 2015 - Springer
Background One essential element of research is the successful recruitment of participants.
However, concerns are obvious regarding the ethical implications of involving terminally ill …
However, concerns are obvious regarding the ethical implications of involving terminally ill …
The effect of caring on post-bereavement outcome: Research gaps and practice priorities
LJ Breen - Progress in Palliative Care, 2012 - Taylor & Francis
Family caregivers are the primary caregivers of family members over the course of illness.
Some caregivers exhibit elevated levels of distress following the death of the person for …
Some caregivers exhibit elevated levels of distress following the death of the person for …
Improving family carers' experiences of support at the end of life by enhancing communication: An action research study
I Dosser, C Kennedy - International journal of palliative …, 2014 - magonlinelibrary.com
Background This paper builds on findings from phase one of a participatory action research
study, which investigated support for family carers at the end of life in an acute hospital …
study, which investigated support for family carers at the end of life in an acute hospital …
Caregiver grief in terminal illness and bereavement: A mixed-methods study
DP Waldrop - Health & Social Work, 2007 - academic.oup.com
Caregivers experience multiple losses during the downhill trajectory of a loved one's
terminal illness. Using mixed methods, this two-stage study explored caregiver grief during a …
terminal illness. Using mixed methods, this two-stage study explored caregiver grief during a …
[HTML][HTML] Family caregivers' preparations for death: a qualitative analysis
LJ Breen, SM Aoun, M O'Connor, D Howting… - Journal of pain and …, 2018 - Elsevier
Context Many family caregivers are not prepared for the death of their family member or
friend. Palliative care services tend to emphasize the patients' preparation for death rather …
friend. Palliative care services tend to emphasize the patients' preparation for death rather …
[HTML][HTML] Bereavement support for family caregivers: The gap between guidelines and practice in palliative care
Background Standards for bereavement care propose that support should be matched to
risk and need. However, studies in many countries demonstrate that palliative care services …
risk and need. However, studies in many countries demonstrate that palliative care services …
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