[HTML][HTML] “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family …

E Harrop, F Morgan, A Byrne, A Nelson - BMC palliative care, 2016 - Springer
Background Research suggests that there may be bereavement experiences and support
needs which are specific to family caregivers providing end of life care (EoLC), although this …

[HTML][HTML] Honoring the voices of bereaved caregivers: a metasummary of qualitative research

L Holtslander, S Baxter, K Mills, S Bocking… - BMC Palliative Care, 2017 - Springer
Background Family caregiving in the context of advanced disease in particular, can be
physically and emotionally taxing. Caregivers can subsequently face bereavement …

[HTML][HTML] The effect of caregiving on bereavement outcome: study protocol for a longitudinal, prospective study

LJ Breen, SM Aoun, M O'Connor - BMC Palliative Care, 2015 - Springer
Background The aim of the current study is to determine the effects of caregiving on
bereavement outcome. The study will address two important gaps in the research …

The potential therapeutic value for bereaved relatives participating in research: An exploratory study

A Germain, CR Mayland, BA Jack - Palliative & supportive care, 2016 - cambridge.org
Objective: Conducting research with the bereaved presents an immediate ethical challenge,
as they are undoubtedly a vulnerable group, associated with high levels of distress and …

[HTML][HTML] End-of-life care research with bereaved informal caregivers–analysis of recruitment strategy and participation rate from a multi-centre validation study

S Stiel, M Heckel, S Bussmann, M Weber… - BMC palliative care, 2015 - Springer
Background One essential element of research is the successful recruitment of participants.
However, concerns are obvious regarding the ethical implications of involving terminally ill …

The effect of caring on post-bereavement outcome: Research gaps and practice priorities

LJ Breen - Progress in Palliative Care, 2012 - Taylor & Francis
Family caregivers are the primary caregivers of family members over the course of illness.
Some caregivers exhibit elevated levels of distress following the death of the person for …

Improving family carers' experiences of support at the end of life by enhancing communication: An action research study

I Dosser, C Kennedy - International journal of palliative …, 2014 - magonlinelibrary.com
Background This paper builds on findings from phase one of a participatory action research
study, which investigated support for family carers at the end of life in an acute hospital …

Caregiver grief in terminal illness and bereavement: A mixed-methods study

DP Waldrop - Health & Social Work, 2007 - academic.oup.com
Caregivers experience multiple losses during the downhill trajectory of a loved one's
terminal illness. Using mixed methods, this two-stage study explored caregiver grief during a …

[HTML][HTML] Family caregivers' preparations for death: a qualitative analysis

LJ Breen, SM Aoun, M O'Connor, D Howting… - Journal of pain and …, 2018 - Elsevier
Context Many family caregivers are not prepared for the death of their family member or
friend. Palliative care services tend to emphasize the patients' preparation for death rather …

[HTML][HTML] Bereavement support for family caregivers: The gap between guidelines and practice in palliative care

SM Aoun, B Rumbold, D Howting, A Bolleter, LJ Breen - PloS one, 2017 - journals.plos.org
Background Standards for bereavement care propose that support should be matched to
risk and need. However, studies in many countries demonstrate that palliative care services …