The potential therapeutic value for bereaved relatives participating in research: An exploratory study

A Germain, CR Mayland, BA Jack - Palliative & supportive care, 2016 - cambridge.org
Objective: Conducting research with the bereaved presents an immediate ethical challenge,
as they are undoubtedly a vulnerable group, associated with high levels of distress and …

Holding on and letting go: Families' experiences of anticipatory mourning in terminal cancer

SR Bouchal, L Rallison, NJ Moules… - OMEGA-journal of …, 2015 - journals.sagepub.com
Although grief and family caregiving have been extensively studied, there exists limited
knowledge of anticipatory grief as it relates to families' transition in illness to bereavement …

Challenges and strategies for hospice caregivers: a qualitative analysis

DP Oliver, G Demiris, KT Washington, C Clark… - The …, 2017 - academic.oup.com
Purpose: Family caregivers of hospice patients are responsible for the day-to-day care of
their loved ones during the final months of life. They are faced with numerous challenges …

[HTML][HTML] Palliative caregivers who would not take on the caring role again

DC Currow, C Burns, M Agar, J Phillips… - Journal of pain and …, 2011 - Elsevier
CONTEXT: Health and social services rely heavily on family and friends for caregiving at the
end of life. OBJECTIVE: This study sought to determine the prevalence and factors …

How do proxies' perceptions of patients' pain, anxiety, and depression change during the bereavement period?

CJ Mcpherson… - Journal of palliative care, 2004 - journals.sagepub.com
The retrospective approach in palliative care research provides valuable insight into death
and dying, and the effectiveness of palliative care. The method involves collecting …

Communication between physicians and family caregivers about care at the end of life: when do discussions occur and what is said?

E Cherlin, T Fried, HG Prigerson… - Journal of palliative …, 2005 - liebertpub.com
Background: Few studies have examined physician–family caregiver communication at the
end of life, despite the important role families have in end-of-life care decisions. We …

[HTML][HTML] Transformative aspects of caregiving at life's end

JR Salmon, J Kwak, KD Acquaviva, K Brandt… - Journal of pain and …, 2005 - Elsevier
We do not know to what extent the needs of caregivers involved with patients at the end of
life are being met by care providers and whether caregiving at life's end can be a positive …

End-of-life concerns and care preferences: congruence among terminally ill elders and their family caregivers

DS Gardner, BJ Kramer - OMEGA-Journal of Death and …, 2010 - journals.sagepub.com
This study examined the end-of-life challenges, concerns, and care preferences of terminally
ill elders and their family caregivers, with a focus on areas of congruence and incongruence …

“It's alright to ask for help”: findings from a qualitative study exploring the information and support needs of family carers at the end of life

E Harrop, A Byrne, A Nelson - BMC palliative care, 2014 - Springer
Background Family carers play an essential role in providing end-of-life care to their
relatives but have been found to experience uncertainty and a lack of confidence in fulfilling …

Preparedness for caregiving and preparedness for death: Associations and modifiable thereafter factors among family caregivers of patients with advanced cancer in …

L Häger Tibell, K Årestedt, M Holm, V Wallin… - Death studies, 2024 - Taylor & Francis
The purpose of this study was to (1) explore associations between preparedness for
caregiving and preparedness for death among family caregivers of patients with advanced …